Databases

NameDescriptionScopePublisherUAMS Faculty UserPublications
Arkansas Health Data Initiative (HDI)
The Arkansas Center for Health Improvement (ACHI) was formed in 1998...

The Arkansas Center for Health Improvement (ACHI) was formed in 1998 as an innovative solution to the health crisis faced by Arkansas. ACHI’s transformation of data into an evidence base for policy decision making is a central component of our health policy and program development. The Arkansas Health Data Initiative (HDI) is a comprehensive system that integrates data sets from a variety of state and national sources providing a unique ability to synthesize key pieces of information previously held separately. Research using these data informs a comprehensive understanding of health and identifies optimal opportunities for the continued improvement of our public systems. The systematic integration of information from across disparate sources provides peripheral vision to programs typically operating in silos and amplifies the ability of each partner involved to identify common resources and potential new partnerships. This unique capacity also allows Arkansas to recruit state-of-the-art researchers to work with us to find answers to pressing health concerns.

National
Arkansas
Arkansas Center for Health Improvement (ACHI)Rouse, Heather
Goudie, Tony

A Comprehensive Review of School-Based Body Mass Index Screening Programs....

A Comprehensive Review of School-Based Body Mass Index Screening Programs and Their Implications for School Health: Do the Controversies Accurately Reflect the Research? Dominique G. Ruggieri PhD, Sarah B. Bass PhD, MPH


Surveys & Reporting [Arkansas Foundation for Medical Care (AFMC)]
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The Arkansas Foundation for Medical Care (AFMC) conducts several surveys each year to measure how satisfied beneficiaries are with Medicaid programs and their prenatal and delivery care, and to assess how beneficiaries perceive their own health. Ratings questions, composites, health scales and question frequencies are used to measure satisfaction.

The ConnectCare, ARKids First A and B, and Non-Emergency Transportation (NET) surveys measure beneficiary satisfaction with these Medicaid programs. For ConnectCare and ARKids First A and B, we conduct CAHPS (Consumer Assessment of Healthcare Providers and Systems) surveys, following HEDIS (Healthcare Effectiveness Data and Information Set) guidelines. CAHPS is scientifically designed to measure and report the experiences that form the basis of consumer satisfaction with health care.

ArkansasArkansas Foundation for Medical Care (AFMC)

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Cross-sectional Study to Assess the Association of Population Density with Predicted Breast Cancer Risk. Lee JY1, Klimberg S, Bondurant KL, Phillips MM, Kadlubar SA.


Arkansas Department of Education (ADE) Data Center
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The ADE Data Center is a collection of data systems; data tools and reports for educators, policy makers, teachers, parents, school districts, and anyone interested in official data from the Arkansas Department of Education (ADE). This site is maintained by the ADE Division of Research & Technology, and most data is provided by Arkansas public school districts.

ArkansasArkansas Department of Education (ADE) Data CenterSwearingen, Christopher

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Developing an Interprofessional Student-Led Clinic to Address Health Disparities in a Pacific Islander Migrant Community. PA McElfish, J Hudson, TK Schulz.


National Birth Defects Prevention Study (NBDPS) Notable Studies 2007 - 2012
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The National Birth Defects Prevention Study (NBDPS) is a population-based, case-control study and has been collecting data since 1997.

The NBDPS is population-based because it looks at all birth defects that happened in a certain area. That area could be a state or a number of counties. One of the important things to watch is whether the number of birth defects in the study area changes over time.

The NBDPS is a case-control study because information is collected from both mothers who have had a pregnancy affected by a birth defect (these are called case mothers) and mothers of babies who do not have a birth defect (these are called control mothers). The controls might also be called the comparison group. Controls are chosen by random selection. This means they are chosen by chance from the population in the study area. In the NBDPS, controls are chosen by a computer program that picks babies from birth certificates or birth hospitals in a given month in the study area.

NationalNational Birth Defects Prevention Study (NBDPS) Notable Studies 2007 - 2012Mosley, Bridget

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Hypospadias and maternal exposure to atrazine via drinking water in the National Birth Defects Prevention study. Winston JJ, Emch M, Meyer RE, Langlois P, Weyer P, Mosley B, Olshan AF, Band LE, Luben TJ

Spatial analysis of gastroschisis in the National Birth Defects Prevention Study. Yazdy MM, Werler MM, Feldkamp ML, Shaw GM, Mosley BS, Vieira VM


national Veterans Healthcare Administration healthcare databases
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Martha Phillips

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The influence of propoxyphene withdrawal on opioid use in veterans. Hayes CJ, Hudson TJ, Phillips MM, Bursac Z, Williams JS, Austin MA, Edlund MJ, Martin BC


Arkansas Reproductive Health Monitoring System (ARHMS) [Arkansas Center for Birth Defects Research and Prevention]
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Arkansas Reproductive Health Monitoring System (ARHMS) monitors and collects data on birth defects throughout the state. ARHMS supports the activities of the Arkansas Center for Birth Defects Research and Prevention by serving as an experienced and timely data collecting system and reporting prevalence trends in the state.

As an active health surveillance system, ARHMS Health Information Specialists visit 83 hospitals in Arkansas and regional hospitals that provide obstetrical or pediatric care for case identification and abstraction.

All AHRMS cases are abstracted from hospital records and only cases diagnosed by physicians are included in the registry. In addition, ARHMS also detects trends in birth defects.

ArkansasArkansas Reproductive Health Monitoring System (ARHMS) [Arkansas Center for Birth Defects Research and Prevention]

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Regional bias in birth defect prevalence rates for Arkansas: influence of incomplete ascertainment along surveillance system borders. Mosley BS, Simmons CJ, Cleves MA, Hobbs CA.


American Community Survey [US Census Bureau]
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The American Community Survey (ACS) is an ongoing statistical survey that samples a small percentage of the population every year -- giving communities the information they need to plan investments and services.

NationalAmerican Community Survey [US Census Bureau]Phillips, Martha
American FactFinder [US Census Bureau]
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American FactFinder provides access to data about the United States, Puerto Rico and the Island Areas. The data in American FactFinder come from several censuses and surveys.

U.S., Puerto Rico and the Island AreasAmerican FactFinder [US Census Bureau]Phillips, Martha
Area Resource File (ARF)
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The Area Resource File (ARF) is a collection of data from more than 50 sources designed to be used by planners, policymakers, researchers, and others interested in the nation's health care delivery system and factors that may impact health status and health care in the U.S.  A search tool is available for looking up variables in the ARF and determining the years for which data are available for a given variable.

National, Multiple States, California, San FranciscoQuality Resource Systems, Inc.
Arkansas Census Data
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The Census State Data Center (CSDC) assists the Census Bureau in promoting the decennial census but its main responsibility is one of dissemination. The Center receives all the Arkansas census information produced in various formats, produces user-friendly products, and disseminates the information to data users throughout the state through a variety of media. In addition to data dissemination, the CSDC provides technical assistance in the understanding and application of the census information.

National
Arkansas
Arkansas Census DataPhillips, Martha
Arkansas Children's Research (CR)
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Children’s Research (CR) is a major source of information on the well-being of Arkansas’ children and their families. Indicators in the CR database include demographics for each county, the safety and security of children, health, education, and economics. Additionally, CR engages in and facilitates research on issues affecting children and families, performs contract database management work for various clients, and publishes reports. The information and services available from CR are extremely useful for research, grant applications, economic and community development, planning, and policy development.

NationalArkansas Children's Research (CR)Phillips, Martha
Census Data - Arkansas [University of Arkansas at Little Rock (UALR) - Arkansas Institute for Economic Advancement (AIEA)]
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The Census State Data Center (CSDC), the official representative of the U. S. Bureau of the Census in Arkansas, assists the Census Bureau in promoting the decennial census but its main responsibility is one of dissemination. The Center receives all the Arkansas census information produced in various formats, produces user-friendly products, and disseminates the information to data users throughout the state through a variety of media. In addition to data dissemination, the CSDC provides technical assistance in the understanding and application of the census information.

The CSDC provides access to data on Housing, Population, Population Changes, and Demographic Profiles for Arkansas and US.

ArkansasCensus Data - University of Arkansas at Little Rock (UALR)Phillips, Martha
Census Data Access Tools - Main Page [US Census Bureau]
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The U.S. Census counts every resident in the United States. It is mandated by Article I, Section 2 of the Constitution and takes place every 10 years. The data collected by the decennial census determine the number of seats each state has in the U.S. House of Representatives and is also used to distribute billions in federal funds to local communities.

NationalCensus Data - U.S. Census BureauPhillips, Martha
Census of Governments [US Census Bureau]
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The Census of Governments identifies the scope and nature of the nation's state and local government sector; provides authoritative benchmark figures of public finance and public employment; classifies local government organizations, powers, and activities; and measures federal, state, and local fiscal relationships.

NationalCensus of Governments [US Census Bureau]Phillips, Martha
Current Population Survey
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The Current Population Survey (CPS) is a monthly survey of about 50,000 households conducted by the Bureau of the Census for the Bureau of Labor Statistics. The CPS is the primary source of information on the labor force characteristics of the U.S. population. The sample is scientifically selected to represent the civilian non-institutional population. Respondents are interviewed to obtain information about the employment status of each member of the household 15 years of age and older. The sample provides estimates for the nation as a whole and provides data used to obtain model-based estimates for individual states and other geographic areas.

NationalU.S. Department of LaborPhillips, Martha
Demographic Surveys [US Census Bureau]
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The U.S. Census Bureau compiles information from household surveys to produce statistics that describe populations and their characteristics, such as age, education, housing and income. The US Census Bureau collects this data by asking household members to provide information about the people who live in the house, apartment, mobile home or group housing.

When the data are processed, all personally identifiable information is removed so no person or household is recognizable. The combined data yield general facts and figures such as the number of people with a high school diploma in a given state. People and businesses then use these statistics to study trends, reach conclusions, and make informed decisions.

NationalDemographic Surveys [US Census Bureau]Phillips, Martha
Economic Census [US Census Bureau]
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The economic census provides a detailed portrait of the United States' economy once every five years, from the national to the local level.

The 2007 Economic Census covers most of the U.S. economy in its basic collection of establishment statistics. There also are several related programs, including statistics on minority- and women-owned businesses. Censuses of agriculture and governments are conducted at the same time.

Results from the 2007 Economic Census were released on American FactFinder (http://factfinder2.census.gov/faces/nav/jsf/pages/searchresults.xhtml?refresh=t), starting in early 2009 and continued through mid 2011.

NationalEconomic Census [US Census Bureau]Phillips, Martha
Economic Surveys [US Census Bureau]
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The Overview of Economic Statistical Programs describes Census Bureau programs that provide statistics about U.S. businesses and governments. Each description includes links to data products, related programs and additional information. "Programs" are major data collection, business list and research data operations, including some funded by other agencies or sponsors. All active programs are included along with discontinued programs of continuing interest. Links are provided to electronic data elsewhere at this site.

NationalEconomic Surveys [US Census Bureau]Phillips, Martha
GIS Applications Laboratory [University of Arkansas (UALR) - ARGIS]
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The mission of the Geographic Information Systems (GIS) Lab is to provide demographic, environmental, marketing and socioeconomic data through the development of geopolitical databases and applications of geographic information and spatial analysis systems. In pursuit of this mission, this facility assists businesses, governmental agencies and educational institutions throughout Arkansas with training, database resources and problem resolution.

NationalGIS Applications Laboratory [University of Arkansas (UALR) - ARGIS]Phillips, Martha
Other Surveys [US Census Bureau]
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The Census Bureau collects information in many other surveys and provides the data to the survey sponsor for release. These sponsors include: 1) Bureau of Justice Statistics (BJS), 2) Bureau of Labor Statistics (BLS), 3) Bureau of Transportation Statistics (BTS), 4) Department of Housing and Urban Development (HUD), 5) National Center for Education Statistics (NCES), 6) National Center for Health Statistics (NCHS), 7) The National Science Foundation (NSF), and 8) The Social Security Administration (SSA).

NationalOther Surveys [US Census Bureau]Phillips, Martha
Population & Housing Census [US Census Bureau]
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The U.S. Census counts every resident in the United States. It is mandated by Article I, Section 2 of the Constitution and takes place every 10 years. The data collected by the decennial census determine the number of seats each state has in the U.S. House of Representatives and is also used to distribute billions in federal funds to local communities.

The 2010 Census represented the most massive participation movement ever witnessed in our country. Approximately 74 percent of the households returned their census forms by mail; the remaining households were counted by census workers walking neighborhoods throughout the United States. National and state population totals from the 2010 Census were released on December 21, 2010. Redistricting data, which include additional state, county and local counts, will be released starting in February 2011.

NationalPopulation & Housing Census [US Census Bureau]Phillips, Martha
Population Estimates and Projections [Institute for Economic Advancement - University of Arkansas at Little Rock (UALR)]
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Population and housing unit estimates at county, MSA, state and national levels.

NationalPopulation Estimates and ProjectionsPhillips, Martha
Publications [Institute for Economic Advancement - University of Arkansas at Little Rock (UALR)]
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Arkansas Statistical Abstract & Children and Childcare Issues in Arkansas

ArkansasPublications [Institute for Economic Advancement - University of Arkansas at Little Rock (UALR)]Phillips, Martha
U.S. Census - Data Access Tools
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US Census Bureau website listing various interactive internet data tools, research data centers, and software.

U.S. Census - Data Access ToolsPhillips, Martha
U.S. Census of Population and Housing Public Use Microdata Samples (PUMS)
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These files contain records for a sample of housing units with information on the characteristics of each unit and each person in it. While preserving confidentiality (by removing identifiers), these microdata files permit users with special data needs to prepare virtually any tabulation.

NationalU.S. Census BureauPhillips, Martha
US census data -- full count - short form (SF1,SF2)
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The official U.S. Census is an actual enumeration of the people every ten years, generally on April 1 in years ending in a zero. A limited number of questions were asked of every person and housing unit in the United States. Information is available on: age, Hispanic or Latino origin, household relationship, race, sex, tenure (whether the home is owned or rented), vacancy characteristics. Census data can be linked to other datasets, for example to obtain median income for each U.S. zip code.

National, Multiple States, California, San FranciscoU.S. Census BureauPhillips, Martha
US census data -- sample count - long form (SF3, SF4)
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The official U.S. Census is an actual enumeration of the people every ten years, generally on April 1 in years ending in a zero. A limited number of questions were asked of every person and housing unit in the United States. Additional questions were asked of a sample of persons and housing units (generally 1 in 6 households). Census data can be linked to other datasets, for example to obtain median income for each U.S. zip code.

NationalU.S. Census BureauPhillips, Martha
Chronic Condition Data Warehouse (CCW)
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The CMS Chronic Condition Data Warehouse (CCW) is a research database designed to make Medicare, Medicaid, and Part D prescription drug event data more readily available to support research designed to improve the quality of care and reduce costs and utilization. CCW provides researchers with Medicare and Medicaid beneficiary, claims, and assessment data linked by beneficiary across the continuum of care. Data are derived from a 5% sample of Medicare beneficiaries and are available for beneficiaries with any of 21 chronic conditions.

NationalCenters for Medicare & Medicaid Services (CMS)
Comparative Effectiveness Research Public Use Data Pilot Project - Chronic Conditions
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As part of the Comparative Effectiveness Research (CER) Public Use Data Pilot Project, IMPAQ completed the CMS 2008 Chronic Conditions Public Use File (PUF). This PUF is an aggregated file in which each record is a profile or cell defined by the characteristics of Medicare beneficiaries. A profile is defined by all combinations of age category, gender, various chronic conditions, and dual-eligibility status of the beneficiaries. For each profile many claim- related variables are provided in the form of averages.

NationalComparative Effectiveness Research Public Use Data Pilot Project - Chronic Conditions
Comparative Effectiveness Research Public Use Data Pilot Project - Inpatient Claims
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As part of the Comparative Effectiveness Research (CER) Public Use Data Pilot Project, IMPAQ completed the first Basic Stand Alone (BSA) Public Use File (PUF). The release contains CMS 2008 BSA Inpatient Claims PUF, which is based on the inpatient claims of a 5% sample of Medicare beneficiaries. The PUF includes basic demographic (age and gender) and claim-related information (diagnosis and procedure codes, length of stay, and average Medicare payment amount). This BSA PUF is now available on the CMS Web site.

NationalComparative Effectiveness Research Public Use Data Pilot Project - Inpatient Claims
Health Care Cost and Utilization Project: Kids Inpatient Databases (HCUP-KID)
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The Kids' Inpatient Database (KID) is of the only all-payer database on hospital inpatient stays for children in the United States. The latest edition of the KID (2009) contains data drawn from 44 State Inpatient Databases on discharges of children 20 years of age and younger. The KID was specifically designed to permit researchers to study a broad range of conditions and procedures related to child health issues. The KID contains clinical and resource use information included in a typical hospital discharge abstract. Researchers and policymakers can use the KID to identify, track, and analyze national trends in health care utilization, access, charges, quality, and outcomes. Identifying information about hospitals is available in states that make this information public and can be used to link the KID to the American Hospital Association Annual Survey database.

NationalAgency for Healthcare Research and Quality (AHRQ)
Health Care Cost and Utilization Project: Nationwide Emergency Department Sample (HCUP-NEDS)
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The Nationwide Emergency Department Sample (NEDS) is national estimates of emergency department (ED) visits which approximates a 20-percent stratified sample of U.S. hospital-based EDs. The NEDS contains clinical and resource use information included in a typical discharge abstract. The NEDS can be weighted to produce national estimates.

NationalAgency for Healthcare Research and Quality (AHRQ)Mosley, Bridget
Health Care Cost and Utilization Project: Nationwide Inpatient Sample (HCUP-NIS)
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The Nationwide Inpatient Sample (NIS) can be used to identify, track, and analyze national trends in health care utilization, access, charges, quality, and outcomes. The NIS is the only national hospital database containing charge information on all patients, regardless of payer, including persons covered by Medicare, Medicaid, private insurance, and the uninsured.

For most States, the NIS includes hospital identifiers that permit linkages to the American Hospital Association (AHA) Annual Survey Database (Health Forum, LLC © 2010) and county identifiers that permit linkages to the Area Resource File.

NationalAgency for Healthcare Research and Quality (AHRQ)Mosley, Bridget
Health Care Cost and Utilization Project: State Emergency Department Databases (HCUP-SEDD)
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The State Emergency Department Databases (SEDD), from data organizations in participating States, capture discharge information on all emergency department visits that do not result in an admission. Information on patients initially seen in the emergency room and then admitted to the hospital is included in the State Inpatient Databases (SID).

NationalAgency for Healthcare Research and Quality (AHRQ)
Health Care Cost and Utilization Project: State Inpatient Databases (HCUP-SID)
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The State Inpatient Databases (SID) contain the universe of the inpatient discharge abstracts in participating States, translated into a uniform format to facilitate multi-State comparisons and analyses. Together, the SID encompass about 90 percent of all U.S. community hospital discharges. Some States include discharges from specialty facilities, such as acute psychiatric hospitals. The SID contain a core set of clinical and nonclinical information on all patients, regardless of payer, including persons covered by Medicare, Medicaid, private insurance, and the uninsured. In addition to the core set of uniform data elements common to all SID, some include other elements, such as the patient's race.

National
Multiple States
Agency for Healthcare Research and Quality (AHRQ)
Home Health Outcome and Assessment Information Set (OASIS)
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Since 1999, CMS has required Medicare-certified home health agencies to use the Outcome and Assessment Information Set (OASIS) to collect and transmit data about all adult patients whose care is reimbursed by Medicare and Medicaid with the exception of patients receiving pre- or postnatal services only. Beginning in January 2010, home health agencies have been required to collect a revised version of the OASIS data set (OASIS-C) OASIS-C includes data items supporting measurement of rates for use of specific evidence-based care processes. Medicare covers part-time, medically necessary skilled care (nursing, physical therapy, occupational therapy, and speech-language therapy) and medical supplies that are ordered by a physician under the Part A benefit. In all states, Medicaid covers nursing care, home health aide services, medical supplies, equipment, and appliances. Some states cover additional, optional services.

NationalCenters for Medicare & Medicaid Services (CMS)
Long Term Care Minimum Data Set (MDS)
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The Long-Term Care Minimum Data Set (MDS) is a standardized, primary screening and assessment tool of health status that forms the foundation of the comprehensive assessment for all residents in a Medicare and/or Medicaid-certified long-term care facility. The MDS contains items that measure physical, psychological and psychosocial functioning. The items in the MDS give a multidimensional view of the patient's functional capacities and helps staff to identify health problems.

NationalCenters for Medicare & Medicaid Services (CMS)
Medicaid Research Identifiable Files
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CMS State Medicaid Research Files (SMRF) and the Medicaid Analytic Extract files (MAX which replace SMRF for 1999 data forward) are considered research identifiable files. The MAX files remain similar to the SMRF files, containing beneficiary-level enrollment, utilization, and expenditure data on a calendar year basis for the 51 state Medicaid programs. As with the SMRF files, MAX files include one file with enrollment information (Personal Summary File) and four claim files (Inpatient, Other Therapy, Long Term Care, Prescription Drug) for each year of data. The claims represent final action claims.

National
Multiple States
Centers for Medicare & Medicaid Services (CMS)Martin, Bradley
Medicare Cost Reports
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Medicare-certified institutional providers are required to submit an annual cost report to a Fiscal Intermediary (FI).  The cost report contains provider information such as facility characteristics, utilization data, cost and charges by cost center (in total and for Medicare), Medicare settlement data, and financial statement data. CMS maintains the cost report data in the Healthcare Provider Cost Reporting Information System (HCRIS). HCRIS includes subsystems for the Hospital Cost Report (CMS-2552-96), Skilled Nursing Facility Cost Report (CMS-2540-96), Home Health Agency Cost Report (CMS-1728-94), Renal Facility Cost Report (CMS-265-94) and Hospice Cost Report (CMS-1984-99).

NationalCenters for Medicare & Medicaid Services (CMS)
Medicare Inpatient Rehabilitation Facility Patient Assessment Instrument (IRF-PAI)
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The Medicare Inpatient Rehabilitation Facility Patient Assessment Instrument (IRF-PAI) contains data items that were developed primarily for Medicare's prospective payment system (PPS) for IRFs. IRF-PAI assessments are performed for all Medicare beneficiaries receiving fee-for-service benefits who are admitted to an IRF-PAI. Two IRF-PAI assessments are collected for each Medicare inpatient rehab facility stay, one at admission and one at discharge. IRF-PAI data items address the physical, cognitive, functional, and psychosocial status of patients. IRF-PAI information includes the following clinical items and case mix adjusters: Patient History, Social Cognition, Functional Status, Bowel/Bladder Management, Diagnoses, Medical Complexities, Pain Status, Oral/Nutrition Status, Functional Prognosis, Safety, and Resources for Discharge.

NationalCenters for Medicare & Medicaid Services (CMS)
Medicare Provider Utilization and Payment Data: Physician and Other Supplier
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The Centers for Medicare & Medicaid Services (CMS) has prepared a public data set, the Medicare Provider Utilization and Payment Data: Physician and Other Supplier Public Use File (Physician and Other Supplier PUF), with information on services and procedures provided to Medicare beneficiaries by physicians and other healthcare professionals. The Physician and Other Supplier PUF contains information on utilization, payment (allowed amount and Medicare payment), and submitted charges organized by National Provider Identifier (NPI), Healthcare Common Procedure Coding System (HCPCS) code, and place of service. This PUF is based on information from CMS’s National Claims History Standard Analytic Files. The data in the Physician and Other Supplier PUF covers calendar year 2012 and contains 100% final-action physician/supplier Part B non-institutional line items for the Medicare fee-for-service population.

NationalCenters for Medicare & Medicaid Services (CMS)
Medicare Research Identifiable Files
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The Medicare Research Identifiable Files (RIFs) contain person-specific data on Medicare providers, beneficiaries, and recipients including individual identifiers that would permit the identity of a beneficiary or physician to be deduced (e.g., date of birth, age, race, sex, residence information). Five types of Medicare RIFS are available.

National
Multiple States
Centers for Medicare & Medicaid Services (CMS)
Optum Claims Linked Registry for Oncology
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Optum Claims Linked Registry for Oncology: Optum™ is committed to helping patients, payers, providers and pharmaceutical manufacturers improve access, outcomes and efficiency of care. Our Oncology claims-linked registry can help close the knowledge gap between care and outcomes.

This U.S.-based claims-linked registry for oncology (CLR-Oncology) will:

● Utilize secondary data sources to collect linked medical record and administrative claims data from breast and lung cancer patients
● Support health plan operations and outcomes research, including: description of patient characteristics, disease management patterns and outcomes of care
● Determination of clinical and cost-effectiveness of different treatment regimens, including radiation and supportive oncology therapies
● Offer the description and impact of adverse effects related to different treatment regimens
● Provide quality-of-care assessments

NationalOptumInsight (formally Ingenix)
Optum EHR Clinical Data
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EHR Clinical Data: We aggregate EHR data directly from providers, integrating multiple EHRs from across the continuum of care, both inpatient and ambulatory. We capture a comprehensive clinical picture that includes medications, lab results, vital signs, physician notes, diagnoses, procedures, demographics, hospitalizations and outpatient visits. Optum Humedica NorthStarTM provides a longitudinal view of population care, which allows you to quickly develop and modify brand and commercial strategies, measure comparative effectiveness and provide forecasting metrics.

NationalOptumInsight (formally Ingenix)
Optum Oncology Management Database
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Optum Oncology Management Database: This innovative data set features data collected through the oncology-care cost-management operations of a large, national health plan. Since 2008, patients with breast, lung, colorectal or prostate cancer have been identified using administrative claims data, and their physicians have been asked to submit selected clinical information by fax. The result is a unique database of integrated, patient-level clinical and economic data on more than 76,000 cancer patients. The product sheet contains graphs specific to the types of cancer included in the database. All data have been de-identified to protect patient confidentiality.

NationalOptumInsight (formally Ingenix)
Optum Patient-Reported Health Risk Assessment Data
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Optum Patient-Reported Health Risk Assessment Data: Data on BMI, chronic pain, sleep, stress and other health and lifestyle factors can be linked to administrative claims and other data sources shed more light on your research.

NationalOptumInsight (formally Ingenix)
Optum Retrospective Databases
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Optum Retrospective Database: The size and breadth of our database — which includes enrollment information from 1993 to present day on more than 114 million lives — allows us to link physician and patient survey data, clinical evidence abstracted from medical records, and clinical laboratory results to pharmacy and medical claims history. The completeness of this data allows us to investigate any number of patient, physician, treatment and clinical attributes. Geographic diversity, combined with the longitudinal nature of these data and the ability to see treatments in many settings, affords a unique perspective to the researcher.

NationalOptumInsight (formally Ingenix)
State Ambulatory Surgery Databases (SASD) [Healthcare Cost and Utilization Project (HCUP)]
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The State Ambulatory Surgery Databases (SASD) are a powerful set of databases, from data organizations in participating States, that capture surgeries performed on the same day in which patients are admitted and released. Researchers and policymakers use the SASD to compare inpatient surgery data with ambulatory surgery data; conduct market area research or small area variation analyses; and identify State-specific trends in ambulatory surgery utilization, access, charges, and outcomes.

32 statesAgency for Healthcare Research and Quality (AHRQ)
TRI - CER: IMS PharMetrics LifeLink Health Claims
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The IMS LifeLink PharMetrics Plus™ US Health Plan Claims Database is comprised of commercial health plan information obtained from managed care plans throughout the United States. It includes information collected by the medical plans from medical service providers to facilitate the adjudication and payment of health insurance benefits on behalf of the plan’s enrolled members. It is fully adjudicated medical and pharmaceutical claims for over 150 million unique patients from more than 98 health plans across the nation. The database includes inpatient and outpatient diagnoses (in ICD-9-CM format) and procedures (in CPT-4 and HCPCS formats) as well as retail and mail-order prescription records. Available data on prescription records include the National Drug Code (NDC) as well as the quantity of the medication dispensed. A random 10% sample is available to UAMS researchers.

NationalTRI - CER: IMS PharMetrics LifeLink Health ClaimsMartin, Brad
ISPOR International Digest of Databases [International Society for Pharmacoeconomics and Outcomes Research (ISPOR)]
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The International Society for Pharmacoeconomics and Outcomes Research (ISPOR) has developed an electronic index (digest) of 325 databases from 45 countries--the US section has 153 databases listed. The Digest consists of key attributes of health care databases. It is grouped by country and allows both key word searches and searches by type of database.

NationalInternational Society for Pharmacoeconomics and Outcomes Research (ISPOR)
Surveillance Epidemiology and End Results (SEER) Public-Use Data
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The Surveillance, Epidemiology, and End Results (SEER) Program of the National Cancer Institute (NCI) collects data on cancer incidence and survival from population-based cancer registries throughout the United States. Three databases link SEER data to other sources of data on persons with cancer.

1) The SEER-Medicare Linked Database combines data from SEER with claims data on use of health care services by Medicare beneficiaries. (http://healthservices.cancer.gov/seermedicare/)
2) The SEER-Medicare Health Outcomes Survey Linked Database combines data from SEER with information from the Medicare Health Outcomes Survey (MHOS) about the health-related quality of life (HRQOL) of Medicare beneficiaries enrolled in Medicare Advantage Organizations. (http://outcomes.cancer.gov/surveys/seer-mhos/)
3) The SEER-National Longitudinal Mortality Study Linked Database combines data from SEER with data from the National Longitudinal Mortality Study (NLMS). (http://surveillance.cancer.gov/disparities/nlms/)

NationalNIH National Cancer Institute (NCI)
US Mortality Data
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Mortality data from the National Vital Statistics System (NVSS) (http://www.cdc.gov/nchs/deaths.htm) are a fundamental source of demographic, geographic, and cause-of-death information.  This is one of the few sources of health-related data that are comparable for small geographic areas and are available for a long time period in the United States.  The data are also used to present the characteristics of those dying in the United States, to determine life expectancy, and to compare mortality trends with other countries.

Researchers interested in tracking mortality of individual persons (e.g., persons with a specific disease, persons who received a specific procedure) should consult the National Death Index (http://www.cdc.gov/nchs/ndi.htm).

National
Multiple States
California
CDC National Center for Health Statistics
Alcohol Epidemiologic Data Directory [National Institutes of Health (NIH) - National Institute on Alcohol Abuse and Alcoholism (NIAAA)]
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This Directory is a current listing of surveys and other relevant data suitable for epidemiologic research on alcohol. Some surveys included in the Directory are designed specifically to answer alcohol-related questions. Other surveys may address other issues but still contain alcohol-related data. The first section of the Directory includes data sets that are representative of the overall U.S. population, although many use different age categories in the sample design. The second section includes data sets on special populations (e.g., adolescents, prison inmates, military personnel, older Americans, and specific racial or ethnic groups). A final section describes publications and other research products available from AEDS. It is important to note that this Directory is not a comprehensive listing of all data sets that are available to alcoholism professionals. Many small-scale surveys, such as single-state surveys and local area surveys, are excluded, as are data sets that are not available to the public.

NationalAlcohol Epidemiologic Data Directory [National Institutes of Health (NIH) - National Institute on Alcohol Abuse and Alcoholism (NIAAA)]
Behavioral Risk Factor Surveillance System
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By the early 1980s, scientific research clearly showed that personal health behaviors played a major role in premature morbidity and mortality. Although national estimates of health risk behaviors among U.S. adult populations had been periodically obtained through surveys conducted by the National Center for Health Statistics (NCHS), these data were not available on a state-specific basis. As a result, surveys were developed and conducted to monitor state-level prevalence of the major behavioral risks among adults associated with premature morbidity and mortality. The basic philosophy was to collect data on actual behaviors, rather than on attitudes or knowledge, that would be especially useful for planning, initiating, supporting, and evaluating health promotion and disease prevention programs. Initial topics included smoking, alcohol use, physical inactivity, diet, hypertension, and seat belt use.

National
Multiple States
Centers for Disease Control and Prevention (CDC)Messias, Erick;
Phillips, Martha
CDC's Pregnancy Risk Assessment Monitoring System (PRAMS) On-line Data for Epidemiologic Research (CPONDER) [US Centers for Disease Control and Prevention (CDC) - Arkansas Department of Health (ADH)]
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PRAMS, the Pregnancy Risk Assessment Monitoring System, is a surveillance project of the Centers for Disease Control and Prevention (CDC) and state health departments. PRAMS collects state-specific, population-based data on maternal attitudes and experiences before, during, and shortly after pregnancy.

U.S. (40 states & New York City)Pregnancy Risk Assessment Monitoring System (PRAMS)
Consumer Assessment of Healthcare Providers and Systems (Medicare CAHPS®); Medicare CAHPS® Data
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The Consumer Assessment of Healthcare Providers and Systems (CAHPS) ask patients to report on their experiences with a range of health care services at multiple levels of the delivery system. Several surveys ask about experiences with ambulatory care providers such as health plans, physicians' offices, and mental health plans, while others ask about experiences with care delivered in facilities such as hospitals, dialysis centers, and nursing homes.

The primary purpose of the CAHPS Database is to facilitate comparisons of CAHPS survey results by and among survey sponsors.  This compilation of survey results from a large pool of survey users into a national database enables participants to compare their own results to relevant benchmarks (i.e., reference points such as national and regional averages).  The CAHPS Database also offers an important source of primary data for research related to patient and consumer assessments of quality as measured by CAHPS surveys.  The CAHPS Database currently contains data from the CAHPS Health Plan Survey and the CAHPS Clinician & Group Survey.

NationalCenters for Medicare & Medicaid Services (CMS)
Dartmouth Atlas of Healthcare
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For more than 20 years, the Dartmouth Atlas Project has documented glaring variations in how medical resources are distributed and used in the United States. The project uses Medicare data to provide comprehensive information and analysis about national, regional, and local markets, as well as individual hospitals and their affiliated physicians.

This web site provides access to all Atlas reports and publications, as well as interactive tools to allow visitors to view specific regions and perform their own comparisons and analyses. These tools have helped other groups create reports like those listed on our Case Studies page (http://www.dartmouthatlas.org/tools/casestudies.aspx). A selection of videos and presentations can be found on our Multimedia page (http://www.dartmouthatlas.org/pages/multimedia).

NationalRobert Wood Johnson Foundation
Health and Retirement Survey (HRS)
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The University of Michigan Health and Retirement Study (HRS) is a longitudinal panel study that surveys a representative sample of more than 26,000 Americans over the age of 50 every two years. The HRS explores the changes in labor force participation and the health transitions that individuals undergo toward the end of their work lives and in the years that follow.

The full scope of the study is described in the publication "Growing Older in America: The Health and Retirement Study" (http://hrsonline.isr.umich.edu/index.php?p=dbook); an overview is provided in our general brochure.

NationalUniversity of MichiganSaid, Qayyim
Hispanic Health and Nutrition Examination Survey (HHANES)
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The Hispanic Health and Nutrition Examination Survey (HHANES) was a nationwide probability sample of approximately 16,000 persons, 6 months-74 years of age that was administered in nine states from 1982 to 1984. Data from the HHANES are generally organized by the data collection method (e.g., Child Sample Person Questionnaire or Dental Examination). The data files comprising the HHANES include a number of demographic and socioeconomic variables on each tape, including age, gender, ethnicity, income, education, and marital status.

NationalCDC National Center for Health StatisticsElfaramawi, Mohammed;
Johnson, Eric;
Messias, Erick
Medical Expenditure Panel Survey (MEPS)
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The Medical Expenditure Panel Survey (MEPS) is a set of large-scale surveys of families and individuals, their medical providers, and employers across the United States. MEPS is the most complete source of data on the cost and use of health care and health insurance coverage.

The Medical Expenditure Panel Survey (MEPS), which began in 1996, is a set of large-scale surveys of families and individuals, their medical providers (doctors, hospitals, pharmacies, etc.), and employers across the United States. MEPS collects data on the specific health services that Americans use, how frequently they use them, the cost of these services, and how they are paid for, as well as data on the cost, scope, and breadth of health insurance held by and available to U.S. workers.

MEPS currently has two major components: the Household Component (http://meps.ahrq.gov/mepsweb/survey_comp/household.jsp) and the Insurance Component (http://meps.ahrq.gov/mepsweb/survey_comp/Insurance.jsp). The Household Component provides data from individual households and their members, which is supplemented by data from their medical providers. The Insurance Component is a separate survey of employers that provides data on employer-based health insurance.

NationalAgency for Healthcare Research and Quality (AHRQ)Li, Chenghui
Medicare Current Beneficiary Survey
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The Medicare Current Beneficiary Survey (MCBS) is a continuous, multipurpose survey of a nationally representative sample of the Medicare population. The central goals of MCBS are to determine expenditures and sources of payment for all services used by Medicare beneficiaries, including co-payments, deductibles, and non-covered services; to ascertain all types of health insurance coverage and relate coverage to sources of payment; and to trace processes over time, such as changes in health status and spending down to Medicaid eligibility and the impacts of program changes, satisfaction with care, and usual source of care.

NationalCenters for Medicare & Medicaid Services (CMS)
Medicare Health Outcomes Survey (HOS)
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The Medicare HOS is the largest survey effort ever undertaken by the Centers for Medicare & Medicaid Services (CMS). The goal of the Medicare HOS program is to gather valid and reliable data on the health status of Medicare beneficiaries enrolled in managed care for use in quality improvement activities, plan accountability, public reporting, and health improvement. All managed care plans with Medicare Advantage contracts must participate.

NationalCenters for Medicare & Medicaid Services (CMS)
National Ambulatory Medical Care Survey (NAMCS)
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The National Ambulatory Medical Care Survey (NAMCS) is a national survey designed to meet the need for objective, reliable information about the provision and use of ambulatory medical care services in the United States. Findings are based on a sample of visits to non-federal employed office-based physicians who are primarily engaged in direct patient care. Each physician is randomly assigned to a 1-week reporting period.

NationalCDC National Center for Health StatisticsLi, Chenghui
National Epidemiological Survey of Alcoholism and Related Conditions (NESARC)
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In 2001/2002, the National Institute on Alcohol Abuse and Alcoholism (NIAAA) conducted the National Epidemiologic Survey on Alcohol and Related Conditions (NESARC), the largest and most ambitious comorbidity study ever conducted. In addition to an extensive battery of questions addressing present and past alcohol consumption, alcohol use disorders (AUDs), and utilization of alcohol treatment services, NESARC included similar sets of questions related to tobacco and illicit drug use (including nicotine dependence and drug use disorders).

NationalNIH National Institute on Alcohol Abuse and Alcoholism (NIAAA)
National Health and Aging Trends Study (NHATS)
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The National Health and Aging Trends Study (NHATS) is a new resource for the scientific study of functioning in later life. In design and content, NHATS is intended to foster research that will guide efforts to reduce disability, maximize health and independent functioning, and enhance quality of life at older ages.

Among the specific content areas included are: the general and technological environment of the home, health conditions, work status and participation in valued activities, mobility and use of assistive devices, cognitive functioning, and help provided with daily activities (self-care, household, and medical).

NationalNational Health & Aging Trends Study (NHATS)
National Health and Nutrition Examination Survey (NHANES)
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The National Health and Nutrition Examination Survey (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The survey is unique in that it combines interviews and physical examinations. The NHANES interview includes demographic, socioeconomic, dietary, and health-related questions. The examination component consists of medical, dental, and physiological measurements, as well as laboratory tests administered by highly trained medical personnel.

NationalCDC National Center for Health StatisticsElfaramawi, Mohammed;
Johnson, Eric;
Messias, Erick
National Health Interview Survey (NHIS)
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The National Health Interview Survey (NHIS) has monitored the health of the nation since 1957. NHIS is a a cross-sectional household interview survey that is administered annually to approximately 87,500 persons in approximately 35,000 households. The sample is drawn from each of the 50 states and the District of Columbia.

NationalCDC National Center for Health Statistics
National Home and Hospice Care Survey (NHHCS)
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The National Home and Hospice Care Survey (NHHCS) is a continuing series of nationally representative sample surveys of home and hospice care agencies in the United States. Information is collected about agencies that provide descriptive information on home and hospice care and about their current patients and discharges, their services, and their staff. Data are collected on referral and length of service, diagnoses, number of visits, patient charges, health status, reason for discharge, and types of services provided.

NationalCDC National Center for Health Statistics
National Home Health Aide Survey (NHHAS)
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The National Home Health Aide Survey (NHHAS), the first national probability survey of home health aides, was designed to provide national estimates of home health aides employed by agencies that provide home health and/or hospice care. NHHAS, a multistage probability sample survey, was conducted as a supplement to the 2007 CDC Home National Home and Hospice Care Survey (NHHCS).

NationalCDC National Center for Health Statistics
National Hospital Ambulatory Medical Care Survey (NHAMCS)
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The National Hospital Ambulatory Medical Care Survey (NHAMCS) is designed to collect data on the utilization and provision of ambulatory care services in hospital emergency and outpatient departments. Data are obtained on demographic characteristics of patients, expected source(s) of payment, patients' complaints, diagnoses, diagnostic/screening services, procedures, medication therapy, disposition, types of providers seen, causes of injury (emergency department and ambulatory surgery center only), and certain characteristics of the facility, such as, geographic region and metropolitan status.

NationalCDC National Center for Health StatisticsLi, Chenghui; Martin, Bradley
National Hospital Care Survey (NHCS) [US Centers for Disease Control and Prevention (CDC)]
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The National Hospital Care Survey (NHCS) is designed to provide accurate and reliable health care statistics that answer key questions of interest to health care and public health professionals, researchers and health care policy makers. This includes tracking the latest trends affecting hospitals and health care organizations and factors that influence the use of health care resources, the quality of health care and disparities in health care services provided to population subgroups in the United States.

This new survey integrates inpatient data formerly collected by the National Hospital Discharge Survey (NHDS) (http://www.cdc.gov/nchs/nhds.htm) with the emergency department (ED), outpatient department (OPD), hospital-based ambulatory surgery location (ASL), and freestanding ambulatory surgery center (ASC) data collected by the National Hospital Ambulatory Medical Care Survey (NHAMCS) (http://www.cdc.gov/nchs/ahcd.htm). The integration of these two surveys allows examination of care provided across treatment settings. It will also be possible to link the survey data to the National Death Index (http://www.cdc.gov/nchs/ndi.htm) and the Medicare Provider Analysis and ReviewExternal Web Site Icon (MedPAR) (https://www.cms.gov/Research-Statistics-Data-and-Systems/Files-for-Order/IdentifiableDataFiles/index.html) and Medicaid Statistical Information SystemExternal Web Site Icon (MSIS) (https://www.cms.gov/Research-Statistics-Data-and-Systems/Computer-Data-and-Systems/MSIS/index.html?redirect=/MSIS/) datasets to obtain a more complete picture of patient care.

NationalNational Center for Health Statistics [US Centers for Disease Control and Prevention (CDC)]
National Hospital Discharge Survey (NHDS)
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The National Hospital Discharge Survey (NHDS), which was conducted annually from 1965-2010, was a national probability survey designed to meet the need for information on characteristics of inpatients discharged from non-Federal short-stay hospitals in the United States.

NationalCDC National Center for Health StatisticsMartin, Bradley
National Human Adipose Tissue Survey (NHATS) [U.S. Environmental Protection Agency (EPA) - National Center for Environmental Assessment (NCEA)]
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The U.S. Environmental Protection Agency (EPA)'s National Human Monitoring Program (NHMP), established by the U.S. Public Health Service in 1967, used an exposure-based approach to assess human exposure to toxic substances. Its primary component was the National Human Adipose Tissue Survey (NHATS), an annual survey conducted from 1970 to 1989 to collect and chemically analyze human adipose tissue specimens for the presence of toxic chemicals.

Objectives of the NHATS survey were to estimate baseline levels and trends of exposure to toxic chemicals for the U.S. population and selected subpopulations.

NationalNational Human Adipose Tissue Survey (NHATS) [U.S. Evironmental Protection Agency (EPA) - National Center for Environmental Assessment (NCEA)]Elfaramawi, Mohammed;
Johnson, Eric
National Immunization Survey (NIS)
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Since 1994, the National Immunization Survey (NIS), conducted by the National Center for Immunizations and Respiratory Diseases and the National Center for Health Statistics of the Centers for Disease Control and Prevention (CDC), has provided the public with important statistics about childhood immunization and related health matters.

NationalCDC National Center for Health Statistics
National Longitudinal Alcohol Epidemiology Survey (NLAES)
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The National Longitudinal Alcohol Epidemiologic Survey (NLAES) is a multipurpose survey designed to collect longitudinal data on the prevalence of alcohol abuse and dependence associated with disabilities. Data collected include detailed measures of alcohol consumption and patterns of use; consequences of alcohol use' other drug use and associated disorders; other psychiatric disorders; other medical problems; detailed income from a variety of different sources for use in assessing the economic impact of alcohol disorders; treatment utilization; and awareness of alcohol warning labels.

NationalNIH National Institute on Alcohol Abuse and Alcoholism (NIAAA)
National Longitudinal Study of Adolescent Health (Add Health)
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Add Health is the largest, most comprehensive longitudinal survey of adolescents ever undertaken. Beginning with an in-school questionnaire administered to a nationally representative sample of students in grades 7-12, the study followed up with a series of in-home interviews. Other sources of data include questionnaires for parents, siblings, fellow students, and school administrators and interviews with romantic partners. Preexisting databases provide information about neighborhoods and communities.

Add Health Waves I and II focus on the forces that may influence adolescents’ health and risk behaviors, including personal traits, families, friendships, romantic relationships, peer groups, schools, neighborhoods, and communities. Wave III, conducted when respondents were between 18 and 26* years old, focuses on how adolescent experiences and behaviors are related to decisions, behavior, and health outcomes in the transition to adulthood. At Wave IV, respondents were ages 24-32** and assuming adult roles and responsibilities. Follow up at Wave IV has enabled researchers to study developmental and health trajectories across the life course of adolescence into adulthood using an integrative approach that combines the social, behavioral, and biomedical sciences in its research objectives, design, data collection, and analysis.

NationalNational Institutes of Health (NIH)Elfaramawi, Mohammed;
Johnson, Eric
National Longitudinal Survey of Youth (NLSY79 and NLSY97)
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The National Longitudinal Surveys (NLS) are a set of surveys designed to gather information at multiple points in time on the labor market activities and other significant life events of several groups of men and women.

1) National Longitudinal Survey of Youth 1997 (NLSY97) (http://www.bls.gov/nls/nlsy97.htm)
2) National Longitudinal Survey of Youth 1979 (NLSY79) (http://www.bls.gov/nls/nlsy79.htm)
3) NLSY79 Children and Young Adults (http://www.bls.gov/nls/nlsy79ch.htm)
4) National Longitudinal Surveys of Young Women and Mature Women (NLSW) (http://www.bls.gov/nls/nlsorig.htm)
5) National Longitudinal Surveys of Young Men and Older Men (http://www.bls.gov/nls/oldyoungmen.htm)

NationalU.S. Department of LaborElfaramawi, Mohammed;
Johnson, Eric
National Maternal and Infant Health Survey (NMIHS)
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The objective of the National Maternal and Infant Health Survey (NMIHS) was to collect data needed by Federal, State, and private researchers to study factors related to poor pregnancy outcomes, including low birthweight, stillbirth, infant illness, and infant death. The NMIHS was a followback survey -- it followed back to informants named on vital records.

Earlier studies about maternal and infant health were the National Natality Surveys, conducted in 1963, 1964-66, 1968-69, 1972, and 1980. A National Fetal Mortality Survey was done in 1980, and a National Infant Mortality Survey was conducted in 1964-66. Published findings appear in Vital and Health Statistics, Series 22 (http://www.cdc.gov/nchs/products/series/series22.htm).

NationalCDC National Center for Health Statistics
National Nursing Assistant Survey (NNAS)
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The National Nursing Assistant Survey (NNAS) is the first national study of nursing assistants working in nursing facilities in the United States. The NNAS will look at the important role of nursing assistants in providing long-term care services for the growing elderly and chronically ill population.

The NNAS, part of the National Nursing Home Survey, will provide new information needed to recruit, retain, and expand paraprofessional long-term care workforce. The survey will help identify nursing assistants priorities, ways to meet those priorities, and how to prevent staffing shortages in the future.

NationalCDC National Center for Health Statistics
National Nursing Home Survey (NNHS)
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The National Nursing Home Survey (NNHS) is a continuing series of national sample surveys of nursing homes, their residents, and their staff. Although each of these surveys emphasized different topics, they all provided some common basic information about nursing homes, their residents, and their staff. All nursing homes included in this survey had at least three beds and were either certified (by Medicare or Medicaid) or had a state license to operate as a nursing home.

NationalCDC National Center for Health Statistics
National School-Based Youth Risk Behavior Survey (YRBS)
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The CDC’s YRBSS is the only surveillance system designed to monitor a wide range of priority health risk behaviors among representative samples of high school students at the national, state, and local levels.

National, state, and large urban school district surveys are conducted every two years among high school students throughout the United States. These surveys monitor priority health risk behaviors including unintentional injuries and violence; tobacco, alcohol, and other drug use; sexual behaviors that contribute to unintended pregnancy and sexually transmitted diseases, including HIV infection; unhealthy dietary behaviors; and physical inactivity. These surveys also monitor obesity and asthma among students.

NationalCenters for Disease Control and Prevention (CDC)Messias, Erick;
Phillips, Martha
National Study of Long-Term Care Providers (NSLTCP) [US Centers for Disease Control and Prevention (CDC)]
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The biennial National Study of Long-Term Care Providers (NSLTCP), sponsored by the U.S. Centers for Disease Control and Prevention’s National Center for Health Statistics (NCHS), is a groundbreaking initiative to monitor trends in the major sectors of paid, regulated long-term care services providers. NSLTCP includes adult day services centers, home health agencies, hospices, nursing homes, and assisted living and similar residential care communities. The vision for NSLTCP is to offer reliable, accurate, relevant and timely statistical information to support and inform long-term care services policy, research and practice.

NSLTCP replaces NCHS’ previous National Nursing Home Survey, National Home and Hospice Care Survey, and National Survey of Residential Care Facilities.

NationalNational Center for Health Statistics [US Centers for Disease Control and Prevention (CDC)]
National Survey of Ambulatory Surgery (NSAS)
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The National Survey of Ambulatory Surgery (NSAS) is the only national study of ambulatory surgical care in hospital-based and freestanding ambulatory surgery centers (ASCs). Efforts are now underway to include ambulatory surgery centers in the National Hospital Ambulatory Medical Care Survey (NHAMCS). The NHAMCS website (http://www.cdc.gov/nchs/ahcd.htm) provides more information on the efforts.

NationalCDC National Center for Health Statistics
National Survey of Child and Adolescent Well-being
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The National Survey of Child and Adolescent Well-Being (NSCAW) is a nationally representative, longitudinal survey of children and families who have been the subjects of investigation by Child Protective Services. There have been two cohorts of children enrolled in the survey, which makes available data drawn from first-hand reports from children, parents, and other caregivers, as well as reports from caseworkers, teachers, and data from administrative records. NSCAW examines child and family well-being outcomes in detail and seeks to relate those outcomes to experience with the child welfare system and to family characteristics, community environment, and other factors. The study addresses crucial program, practice, and policy issues in the areas of dynamics of the child welfare system, and outcomes for children and families.

NationalAdministration for Children & Families (ACF)
National Survey of Children with Special Health Care Needs
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The National Survey of Children with Special Health Care Needs (NS-CSHCN) takes a close look at the health and functional status of children with special health care needs in the U.S.—their physical, emotional and behavioral health, along with critical information on access to quality health care, care coordination of services, access to a medical home, transition services for youth, and the impact of chronic condition(s) on the child’s family.

The survey provides a broad range of information about the health and well-being of CSHCN collected in a standardized manner that allows comparisons across states as well as comparisons with the nation. It also serves to complement the National Survey of Children’s Health (NSCH) by providing in-depth data on the unique health experiences of children with special health care needs (CSHCN).

NationalCDC National Center for Health Statistics
National Survey of Children's Health
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The National Survey of Children’s Health (NSCH) touches on multiple, intersecting aspects of children’s lives. The survey includes physical and mental health status, access to quality health care, as well as information on the child’s family, neighborhood and social context.

The survey provides a broad range of information about children’s health and well-being collected in a standardized manner that allows comparisons across states as well as comparisons to the nation. It also serves to complement the National Survey of Children with Special Health Care Needs (NS-CSHCN) by providing data on the health of the general U.S. child population.

NationalCDC National Center for Health Statistics
National Survey of Family Growth
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The National Survey of Family Growth (NSFG) gathers information on family life, marriage and divorce, pregnancy, infertility, use of contraception, and men's and women's health. The survey results are used by the U.S. Department of Health and Human Services and others to plan health services and health education programs, and to do statistical studies of families, fertility, and health. Links to some of those studies are included on this web site, under "Publications and Information Products (http://www.cdc.gov/nchs/nsfg/nsfg_products.htm)."

NationalCDC National Center for Health Statistics
National Survey of Residential Care Facilities
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National Survey of Residential Care Facilities (NSRCF)—national probability sample survey of residential care facilities with four or more beds—collected data on residential care providers, their staffs and services, and their current residents.

Included are residential care facilities; assisted living residences; board and care homes; congregate care; enriched housing programs; homes for the aged; personal care homes; and shared housing establishments that are licensed, registered, listed, certified, or otherwise regulated by a state. NSRCF is designed to produce national estimates of these places and their residents.

NationalCDC National Center for Health Statistics
National Survey of Residential Care Facilities (NSRCF)
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The 2010 National Survey of Residential Care Facilities (NSRCF) is a first-ever national probability sample survey that collects data on U.S. residential care providers, their staffs and services, and the people they serve. It is designed to provide national estimates of the number of residential care facilities operating in the United States, the number of residents receiving care, and the characteristics of both the facilities and their residents. NSRCF was conducted between March and November 2010. All residential care facilities that participated in the survey were places that were licensed, registered, listed, certified, or otherwise regulated by the state and that had 4 or more licensed, certified, or registered beds, provided room and board with at least two meals a day, around-the-clock on-site supervision, and help with personal care such as bathing and dressing or health related services such as medication management. These facilities served a predominantly adult population and had at least one current resident. Facilities licensed to serve the mentally ill or the developmentally disabled populations exclusively were excluded from the survey.

The 2010 NSRCF data were collected through in-person interviews with facility directors and their designated staffs; no interviews were conducted directly with residents. Facility data included questions on facility characteristics such as ownership, size, types of living arrangements and amenities, policies, staffing, services, and general resident characteristics. Data collected on residents included questions on the sampled residents’ demographics, living arrangements, activities, health conditions, cognitive and physical functioning, and services received. The total number of facilities that participated in the 2010 NSRCF is 2,302, and data are available on 8,094 residents from these facilities.

NationalNational Center for Health Statistics [US Centers for Disease Control and Prevention (CDC)]
National Survey on Drug Use and Health (NSDUH)
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The National Survey on Drug Use and Health (NSDUH) is the primary source of information on the prevalence, patterns, and consequences of alcohol, tobacco, and illegal drug use and abuse in the general U.S. civilian non institutionalized population, age 12 and older.

NationalSubstance Abuse and Mental Health Services Administration (SAMHSA)
State and Local Area Integrated Telephone Survey (SLAITS)
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The State and Local Area Integrated Telephone Survey (SLAITS) collects important health care data at State and local levels. This data collection mechanism was developed by the National Center for Health Statistics (NCHS) of the Centers for Disease Control and Prevention (CDC) and is comprised of 11 survey modules. It supplements current national data collection strategies by providing in-depth State and local area data to meet various program and policy needs in an ever-changing health care system. The surveys focus on selected topics that include; (Iowa and Washington State, data collected 1997) Child Well-Being and Welfare (Texas and Minnesota, data collected 1998-99), National Survey of Early Childhood Health (NSECH) (National Sample, data collected 2000), National Asthma Survey (NAS) (National Sample and four State samples, data collected 2003), National Survey of Adoptive Parents (NSAP) (National sample, data collected 2007), Survey of Adult Transition and Health (SATH) (Follow-back sample, data collected 2007), Influenza Vaccination Module for Children (IVMC) (National and State samples, data collected 2007), National Survey of Adoptive Parents of Children with Special Health Care Needs (NSAP-SN) (National sample, data collected 2008), Survey of Pathways to Diagnosis and Services (National sample, data collected 2011), National Survey of Children in Nonparental Care (New) (National sample, data collected 2013), National Survey of the Diagnosis and Treatment of ADHD and Tourette Syndrome (New) (National sample, data collected 2014)

State & Local AreaState and Local Area Integrated Telephone Survey (SLAITS) [US Centers for Disease Control and Prevention (CDC) - National Center for Health Statistics (NCHS)]
Survey of Income and Program Participation
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The main objective of the SIPP is to provide accurate and comprehensive information about the income of American individuals and households and the participation of these people in income transfer programs.

This survey collects information on participation in public assistance programs, such as SNAP (food stamps), TANF (welfare), and WIC.  It also collects information on poverty, income, employment, and health insurance coverage.

NationalU.S. Census Bureau
The Third National Health and Nutrition Examination Survey (NHANES III)
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The Third National Health and Nutrition Examination Survey (NHANES III), 1988-94, is of primary interest to researchers interested in analyzing historical data on demographic, socioeconomic, dietary, and health-related questions and medical, dental, and physiological measurements. More current data on these topics is available from the ongoing NHANES survey.

NationalCDC National Center for Health StatisticsElfaramawi, Mohammed;
Johnson, Eric;
Messias, Erick
Data Management Core [Center for Rehabilitation Research using Large Datasets (CRRLD)]
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The mission of the Center is to build rehabilitation research capacity by increasing the quantity and quality of rehabilitation outcomes research using large administrative and research datasets. The CRRLD includes a consortium of investigators at the University of Texas Medical Branch (UTMB), Cornell University, the Rehabilitation Institute of Chicago and the Uniform Data System for Medical Rehabilitation (Buffalo, NY).

The CRRLD Data Management Core (DMC) is a central resource for investigators at UTMB and partner institutions interested in working with large datasets for conducting medical rehabilitation research. The DMC is divided into three phases: data acquisition (obtaining datasets from governmental and non-governmental entities), data management (compilation, maintenance, storage, and security) and data extraction. In order to ensure efficiency of data utilization by several investigators and provision of support, the model below will be used.

NationalRehabilitation Research [Center for Rehabilitation Research using Large Datasets (CRRLD)]
Annual Statistical Reports [Arkansas Department of Human Services (DHS)]
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The Arkansas Department of Human Services (DHS) listing of annual statistical reports for all divisions, including Medicaid, from state fiscal year 2003 through state fiscal year 2013.

ArkansasAnnual Statistical Reports [Arkansas Department of Human Services (DHS)]
Arkansas Hospital Discharge Data System [Arkansas Department of Health (ADH)]
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The Arkansas Hospital Discharge Data System is one of the most important tools for addressing a broad range of health policy issues. Act 670 of 1995, A.C.A. 20-7-201 et seq., requires all hospitals licensed in the state of Arkansas to report information on inpatient discharges. “All hospitals” include general medical surgical (GMS) hospitals, Critical Access Hospitals (CAH), long-term acute care hospitals (LTAC), psychiatric and rehabilitation hospitals. The Act also specifically prohibits the release of any information from the collected data that identifies, or could be used to identify, any individual patient, provider, institution or health plan.

Beginning in 1996 with very limited data, the system has grown to include virtually all discharges with a stay of more than one day. Information reported includes demographics such as date of birth, gender, race and ethnicity. Clinical information includes dates of service, discharge status, diagnoses, procedures and injury data. Charges are included, as well.

Staff edit and complete these data, then combine data from all the hospitals into a dataset for each calendar year. Staff then are able to access information for policy, planning and research applications for the submitting hospitals and many other interested parties. The de-identified datasets are shared with other states, for services provided in Arkansas to residents of that state, and with the national HCUP dataset.

ArkansasStatewide Hospital Discharge Data [Arkansas Department of Health (ADH)]Phillips, Martha
Arkansas Medicaid Program Overview (by State Fiscal Year (SFY)) [Arkansas Department of Human Services (DHS) - Arkansas Division of Medical Services (DMS)]
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The Department of Human Services (DHS) runs the Medicaid program in Arkansas. This source provides AR Medicaid report including HEDIS measures and Medicaid program overviews describing summary reports on key statistics of the Medicaid program.

ArkansasArkansas Division of Medical Services (DMS)
Arkansas Prescription Monitoring Program (APMP) [AR Dept of Health]
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The Arkansas Department of Health (ADH) oversees the operation of the Electronic Prescription Monitoring Program (PMP) and has selected Health Information Designs (HID) to develop a database that will collect and store prescribing and dispensing data for controlled substances in Schedules II, III, IV, and V and any other drugs specified by Arkansas law as amended.

Arkansas law requires that each dispenser shall submit, by electronic means, information regarding each prescription dispensed for a controlled substance. Each time a controlled substance is dispensed to an individual, the dispenser shall submit the information required by Arkansas law to the central repository weekly for the previous week, Sunday through Saturday.

ArkansasArkansas Prescription Monitoring Program (APMP) [AR Dept of Health]
Arkansas State Health Alliance for Records Exchange (SHARE)
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The Arkansas State Health Alliance for Records Exchange (SHARE) is a state-wide health information exchange (HIE) that allows participating doctors, nurses, specialists, health services professionals and public health authorities to access and securely exchange with each other real-time, electronic patient information that is protected by federal and state privacy and security laws.

Participating SHARE providers have access to their patients’ lab results, immunization records, X-ray reports, medication allergies and other vital information. By viewing health histories in SHARE, health care providers will have more complete medical information to provide high quality care and coordinate treatment with other health care providers.

ArkansasArkansas State Health Alliance for Records Exchange (SHARE)
Biomarkers for Breast Cancer Prevention Study (B4BCP) [National Institutes of Health (NIH) - National Cancer Institute (NCI) - Division of Cancer Epidemiology & Genetics (DCEG)]
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Investigators in DCEG are conducting a cross-sectional study of urinary estrogen metabolites in association with mammographic density among postmenopausal women. Participants are drawn from the cross-sectional Biomarkers for Breast Cancer Prevention (B4BCP) study, which was designed to explore determinants of mammographic density in a sample of postmenopausal women.

The present study takes advantage of a well-characterized study sample, an intermediate marker of breast cancer risk, and the sensitive, specific, and reliable LC/MS2 assay to test hypotheses about the roles of estrogen metabolism in breast cancer etiology. Investigators are studying associations of urinary estrogen metabolite profiles with mammographic density, dietary and lifestyle factors, and established breast cancer risk factors.

Buffalo, NYBiomarkers for Breast Cancer Prevention Study (B4BCP) [National Institutes of Health (NIH) - National Cancer Institute (NCI) - Division of Cancer Epidemiology & Genetics (DCEG)]Fuhrman, Barbara
Cardiothoracic Surgery Research Data [Society of Thoracic Surgeons (STS) National Database]
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The Society of Thoracic Surgeons (STS) National Database is the premier clinical data registry for cardiothoracic surgery. It includes three component parts: the Adult Cardiac Surgery Database, the General Thoracic Surgery Database, and the Congenital Heart Surgery Database. This wealth of information is available to physicians, researchers, and the healthcare industry to use for quality improvement, and in comparative effectiveness research, clinical trials, post-market surveillance, and basic and translational research.

U.S.Society of Thoracic Surgeons (STS) National DatabaseMosley, Bridget
Cost-Effectiveness Analysis Registry [Center for the Evaluation of Value and Risk in Health (CEVR) - Tufts Medical Center]
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The Cost-Effectiveness Analysis (CEA) Registry is a comprehensive database containing detailed information on more than 8,650 standardized cost-effectiveness ratios and more than 11,800 utility weights published in the peer-reviewed literature. It details studies published from 1976 through 2012 and is regularly updated.

These studies estimate health benefits (in terms of quality-adjusted life-years (QALYs)) and incremental costs for a wide range of health and medical interventions, thus offering a means to identify promising opportunities to invest the nation’s health care resources.

NationalCenter for the Evaluation of Value and Risk in Health (CEVR) [Tufts Medical Center]
CVRN Anticoagulation and Risk Factors in Atrial Fibrillation (ATRIA‐CVRN) Study Dataset [Cardiovascular Research Network (CVRN)]
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The ATRIA‐CVRN Study Dataset is a collection of analytic datasets that serve as a research database of patients with incident atrial fibrillation or atrial flutter (AF), and was established to address multiple research questions related to the epidemiology, management, and outcomes of AF. The ATRIA‐CVRN Study was initially funded by the National Heart, Lung, and Blood Institute (NHLBI). One of the aims in creating the ATRIACVRN Dataset is to establish and characterize a contemporary registry of incident AF within very large, diverse, community‐based populations in order to provide critical insight into current outcome event rates, practice patterns, and potential health disparities.

RegionCardiovascular Research Network (CVRN) [U.S. National Institutes of Health (NIH) - National Heart, Lung, and Blood Institute]
CVRN Cardiovascular Disease (CVD) Surveillance Dataset [Cardiovascular Research Network (CVRN)]
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The CVRN Cardiovascular Disease (CVD) Surveillance Dataset is a research analytic dataset of patients hospitalized for one of the following conditions: acute coronary syndrome (ACS, defined as acute myocardial infarction or unstable angina), heart failure (HF), or stroke (ischemic, hemorrhagic, or transient ischemic attack).

The CVRN CVD Surveillance Dataset is a pooled dataset using data extracted from multiple sites within the CVRN using standardized programs that convert local source data extracts into a common dataset structure with the same mapped variables and corresponding definitions.

RegionCardiovascular Research Network (CVRN) [U.S. National Institutes of Health (NIH) - National Heart, Lung, and Blood Institute]
CVRN Community‐Based Control and Persistence of Warfarin Therapy and Associated Rates and Predictors of Adverse Clinical Events in Atrial Fibrillation and Venous Thromboembolism (WAVE) Study Dataset
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The CVRN WAVE Dataset is a longitudinal research database of patients who have been newly prescribed warfarin as anticoagulation therapy for the treatment of atrial fibrillation (AF) or venous thromboembolism (VTE). One of the aims in creating the CVRN WAVE Dataset is to provide a contemporary real‐world assessment of the quality of control and persistence of warfarin therapy for patients with AF and VTE in a large, community‐based network of clinical practices.

The WAVE Dataset also facilitates future multi‐site research studies as the preparatory work for pooling existing data across multiple sites has already been completed. Each of the participating sites followed the same data collection steps and transferred their data to Kaiser Permanente Northern California (KPNC), where it has been compiled to produce an analytic dataset with a single, common structure.

RegionCardiovascular Research Network (CVRN) [U.S. National Institutes of Health (NIH) - National Heart, Lung, and Blood Institute]
CVRN Hypertension Study Dataset [Cardiovascular Research Network (CVRN)]
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The CVRN Hypertension Dataset is a research database of patients with hypertension. The Dataset contains data for patients with 1) recognized hypertension (presence of a hypertension diagnosis or dispensed anti‐hypertensive medication) or 2) unrecognized hypertension (two or more consecutive elevated outpatient blood pressures (EBPs) without accompanying hypertension diagnosis or hypertension treatment). At the core of the CVRN Hypertension Registry is a cohort composed of patients who have met one of the criteria for hypertension. Additional content areas contain data elements commonly required for research studies. The primary content areas include enrollment, demographics, vital signs, pharmacy dispensing and utilization information (i.e. encounters, diagnoses, and procedures), and lab test results.

RegionCardiovascular Research Network (CVRN) [U.S. National Institutes of Health (NIH) - National Heart, Lung, and Blood Institute]
CVRN Management and Outcomes of Heart Failure with Preserved Systolic Function (PRESERVE) Study Dataset [Cardiovascular Research Network (CVRN)]
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The CVRN PRESERVE Dataset is a research database of patients with diagnosed heart failure (HF) and known left ventricular systolic function. Preserved left ventricular (LV) function is typically defined as having a LV ejection fraction of ≥50% or a qualitative assessment of normal or preserved systolic function. One of the aims in creating the PRESERVE Dataset is to assemble a large, diverse, multicenter cohort of adults with heart failure and documented preserved left ventricular systolic function.

The PRESERVE Dataset facilitates multi‐site research as the preparatory work for pooling existing data across multiple sites has already been completed. Each of the participating sites follows the same data collection steps and transfers their data to Kaiser Permanente Northern California (KPNC), where it is compiled to produce an analytic dataset with a single, common structure. This compiled dataset is hosted at KPNC and may be analyzed as a whole or may be broken down by site if desired.

RegionCardiovascular Research Network (CVRN) [U.S. National Institutes of Health (NIH) - National Heart, Lung, and Blood Institute]
DARTNet Institute Datasets
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The DARTNet Institute is a rapidly growing collaboration of practice-based research networks that are building a national collection of data from electronic health records, claims, and patient-reported outcomes. The networks blend quality improvement, effectiveness, and translational research with a data driven-learning system. The learning system includes advanced performance measures and assistance with the development and deployment of clinical decision support systems.

DARTNet is a federated network of electronic health record data and other clinical information from multiple organizations across the United States. A federated network is a collection of databases that reside in multiple member practices and that are linked through a secure Web-based system so they can be searched and queried as one large database while maintaining privacy and confidentiality of patient data.

The nine distinct research networks that make up DARTNet Institute offer access to approximately 12.5 million patient visits per year, 5 million patient lives, and approximately five billion data points.

Geographic representation based on nine primary care research networks.DARTNet Institute
Drug Abuse Warning Network (DAWN) [Substance Abuse and Mental Health Services Administration (SAMHSA)]
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The Drug Abuse Warning Network (DAWN) is a public health surveillance system that monitors drug-related hospital emergency departments (EDs) and drug-related deaths investigated by medical examiners and coroners (MEs).

NationalDrug Abuse Warning Network (DAWN) [Substance Abuse and Mental Health Services Administration (SAMHSA)]
Drug Approvals and Databases [U.S. Food and Drug Administration (FDA)]
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Drug-related databases from FDA; information on drug approvals.

NationalDrug Approvals and Databases [U.S. Food and Drug Administration (FDA)]
Electronic Data Methods (EDM) Forum
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The Electronic Data Methods (EDM) Forum advances the national dialogue on the use of electronic clinical data for the conduct of CER, quality improvement (QI), and clinical decision support by facilitating exchange and collaboration between the PROSPECT, DRN, and Enhanced Registry Projects. Through this web site, we encourage an open and ongoing dialogue amongst stakeholders on the various topics identified through the set of activities outlined under the EDM Forum.

NationalElectronic Data Methods (EDM) Forum
FDA Adverse Event Reporting System (FAERS) [U.S. Food and Drug Administration (FDA)]
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The FDA Adverse Event Reporting System (FAERS) is a database that contains information on adverse event and medication error reports submitted to FDA. The database is designed to support the FDA's post-marketing safety surveillance program for drug and therapeutic biologic products. The informatic structure of the FAERS database adheres to the international safety reporting guidance issued by the International Conference on Harmonisation (ICH E2B1). Adverse events and medication errors are coded to terms in the Medical Dictionary for Regulatory Activities (MedDRA)2 terminology.

NationalFDA Adverse Event Reporting System (FAERS) [U.S. Food and Drug Administration (FDA)]
Health Indicators Warehouse (HIW)
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Access to high quality data improves understanding of a community’s health status and determinants, and facilitates the prioritization of interventions. The HIW serves as the data hub for the HHS Community Health Data Initiative, a flagship HHS open government initiative to release data. The HIW is a collaboration of many Agencies and Offices within the Department of Health and Human Services and is maintained by the CDC’s National Center for Health Statistics.

NationalHealth Indicators Warehouse (HIW)
HMO Cancer Research Network (CRN)
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The Cancer Research Network (CRN) is an NCI-funded initiative to support and facilitate cancer research based in non-profit integrated health care delivery settings. The CRN welcomes collaborations that result in research projects that improve knowledge about cancer etiology, prevention, early detection, treatment and prognosis, and that decreases the burden of cancer across the cancer care spectrum. The integrated health care settings provide unique advantages for conducting population sciences research. Through the links below, find out more about the CRN, its activities, and how to develop collaborations with the CRN’s many investigators with expertise in conducting public-domain cancer research in these settings.

NationalHealth Maintenance Organization Research Network (HMORN)
Informatics & Research Tools [Cancer Research Network (CRN)]
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The CRN operates as a distributed data network, meaning that each site retains its own data. There is no central data repository. This data structure protects the confidentiality of patient and provider data. However, the CRN has developed standardized data resources to increase the quality and efficiency of research using electronic data. These include the Virtual Data Warehouse (VDW), cancer counters, and other site-specific extracts of electronic medical records. Some CRN Sites have substantial experience with natural language processing.

The VDW is a distributed data warehouse. That is, it is a federated database that is comprised of standardized datasets stored behind security firewalls at each participating CRN site. The datasets include variables with identical names, formats, and specifications (including definitions, labels, and coding). Individual-level data at each CRN site remains under local control. The VDW is supported by a set of informatics tools - hardware and software - facilitating storage, retrieval, processing, and managing VDW datasets. A set of access policies and procedures govern use of VDW resources. Documentation of all elements of the VDW is also maintained by the CRN Informatics Core, working closely with the HMORN VDW team to ensure complementarity rather than duplication of work. The VDW is described in more detail on the HMORN's Collaboration Toolkit.

RegionThe HMO Cancer Research Network (CRN) [U.S. National Institutes of Health (NIH) - National Cancer Institute (NCI)]
Inter-university Consortium for Political and Social Research (ICPSR)
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Inter-university Consortium for Political and Social Research (ICPSR) provides leadership and training in data access, curation, and methods of analysis for a diverse and expanding social science research community.

Inter-university Consortium for Political and Social Research (ICPSR)
Long-term Care: Facts on Care in the US (LTCfocus)
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LTCFocUS.org website hosts data regarding the health and functional status of nursing home residents, characteristics of care facilities, state policies relevant to long term care services and financing, and data characterizing the markets in which facilities exist and, in the future, we plan to expand to include information about other sectors of the long-term care system. These data will allow researchers to examine the relationship between state policies and local market forces and the quality of long-term care. Researchers can use this website to examine care processes and resident outcomes within the context of their local markets and regulatory practices. Policymakers can use the information to shape state and local guidelines, policies, and regulations that promote high-quality, cost-effective, equitable care to older Americans.

Data Sources: Online Survey Certification And Reporting (OSCAR), Minimum Data Set (MDS), State Policy Data, Area Resource File (ARF), and Residential History File (RHF).

NationalLong-term Care: Facts on Care in the US (LTCfocus) [Alpert Medical School at Brown University]
Marketscan Research Databases
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Truven Health Analytics MarketScan® databases: Commercial, Medicare Supplemental, and Medicaid, are huge – over 180 million patients since 1995. Longitudinal integrity is strong. Complete payment information is captured, both what the benefit plan and patient paid. Specialty pharmacy and mail order are included. And, specialty databases link claims to unique data sets such as productivity management, health risk assessment, dental, lab, medical records, and hospital data at the de-identified patient level. A separate hospital database allows for in-hospital research. The MarketScan white paper (http://truvenhealth.com/Portals/0/Users/031/31/31/PH_13434%200314_MarketScan_WP_web.pdf) provides additional detail on individual MarketScan databases.

Truven Health AnalyticsMartin, Brad
Medicare National Coverage Determinations (NCDs) [Center for the Evaluation of Value and Risk in Health (CEVR) - Tufts Medical Center]
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The Tufts Medical Center Medicare National Coverage Determinations (NCDs) Database describes decisions made by the Centers for Medicare and Medicaid Services (CMS). It contains detailed information on 166 NCDs completed between 1999 and 2012. CMS issues national coverage determinations (NCDs) annually for 10-15 technologies projected to have a major impact on the program.

Information is recorded on over 30 attributes for each decision. This data provides a historical perspective on the NCD process and allows for the identification of trends in different aspects of coverage for different types of technologies. We have leveraged Information in the NCD Database by analyzing CMS decisions and identifying trends in CMS policies, review times, and evidentiary standards for a variety of technologies and procedures. Findings from this database have achieved national recognition and can be found in recent articles.[1,2,3]

NationalCenter for the Evaluation of Value and Risk in Health (CEVR) [Tufts Medical Center]
MedMining [Geisinger Health Systems]
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MedMining offers custom, de-identified, EMR based data extracts, that deliver unique insights into pharmacoeconomics and health outcomes. Representing both inpatient and outpatient settings, from primary to specialty care, our data includes: lab results, vital signs, medications, procedures, diagnoses, lifestyle data, and detailed costs – all of which are routinely captured by Geisinger at the point of care. MedMining data reflect the longitudinal relationships Geisinger has with its patients, yielding a dataset with a comprehensive and de-identified view of our patients’ medical histories.

NationalMedMining
Pasitos (Baby Steps) Cohort Study
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The Pasitos Cohort Study was initiated in 1998 to investigate predictors of acquisition and persistence of H. pylori infection in children from low-income families in the border region of El Paso, Texas, and Juarez, Mexico.

El Paso, Texas & Juarez, MexicoPasitos (Baby Steps) Cohort StudyFischbach, Lori
Pasto, Colombia Cohort Study
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A Randomized Clinical Trial to Determine the Efficacy of Regimens Containing Clarithromycin, Metronidazole, and Amoxicillin Among Histologic Subgroups for Helicobacter pylori Eradication in a Developing Country. (from abstract)

Pasto, ColombiaPasto, Colombia Cohort StudyFischbach, Lori
Pediatric Research in Inpatient Settings (PRIS)
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The Pediatric Research in Inpatient Settings (PRIS) network (pronounced 'PRIZE') is a research network whose mission is to improve the health of and healthcare delivery to hospitalized children and their families. PRIS was founded in 2001 and includes nearly 500 hospitalists from 50 pediatric centers across the United States and Canada. PRIS strives to conduct research that is informative, relevant, and addresses real-world systems-based and clinical management decisions for hospitalized children with acute and chronic conditions. It is also concerned with developing strategies for implementing the results of comparative effectiveness research to produce better outcomes and value for hospitalized children and their families.

U.S. & CanadaPediatric Research in Inpatient Settings (PRIS)
PHIS+: Augmenting the Pediatric Health Information System (PHIS) with Clinical Data [Children's Hospital Association]
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The objective of the PHIS+ project is to augment the Pediatric Health Information System (PHIS) with clinical data for conducting comparative effectiveness research (CER).

The PHIS database is a comprehensive pediatric database operated by Children’s Hospital Association (the Association) containing administrative and financial details for more than six million patient cases from 44 leading children’s hospitals.

The augmented database, called PHIS+, contains clinical data such as laboratory, microbiology and radiology results obtained in multiple sites of care (inpatient, outpatient, emergency department and day surgery). PHIS+ provides a rich clinical data source for academic clinicians to conduct comparative effectiveness research studies.

NationalPHIS+: Augmenting the Pediatric Health Information System (PHIS) with Clinical Data [Children's Hospital Association]Mosley, Bridget
Prostate, Lung, Colon, Ovarian (PLCO) Cancer Screening Trial
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The Prostate, Lung, Colorectal and Ovarian (PLCO) Cancer Screening Trial is a large population-based randomized trial designed and sponsored by the National Cancer Institute (NCI) to determine the effects of screening on cancer-related mortality and secondary endpoints in men and women aged 55 to 74. The screening component of the trial was completed in 2006. Participants are being followed and additional data will be collected through 2015. In 2011, the follow up was streamlined and began being moved from the Screening Centers to the Centralized Data Coordinating Center (CDCC). Numerous epidemiologic and ancillary studies are also underway to answer related crucial questions.

The Cancer Data Access System (CDAS) (https://biometry.nci.nih.gov/cdas/) is a web portal that facilitates access to PLCO data other than the biospecimens in EEMS. CDAS provides extensive documentation including a summary of the trial, a description of the data collected, and a searchable list of research projects under way with the data and published results. Analytic data sets for prostate, lung, colorectal, ovarian, breast, biliary, bladder, endometrial, glioma, head & neck, hematopoietic, liver, male breast, melanoma, pancreas, renal, thyroid, and upper GI are available with nearly all the study data available for screening, incidence and mortality analyses.

This extensive PLCO data base has been organized to focus on 18 cancer sites of interest, as well as available questionnaires, ancillary studies, and lab results.

Geographic representation by 10 PLCO Centers. Prostate, Lung, Colon, Ovarian (PLCO) Cancer Screening Trial [National Institutes of Health (NIH) - National Cancer Institute (NCI) - Division of Cancer Prevention (DCP)]Fuhrman, Barbara
Spit for the Cure Cohort
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Convenience sample of more than 25,000 women (18 to 100 years old) with and without history of breast cancer, behavioral risk factor and demographic characteristics, family history of breast cancer, treatment history of survivors.

ArkansasSpit for the Cure Cohort Phillips, Martha
Types of ALLHAT Data Available [The Antihypertensive and Lipid-Lowering Treatment to Prevent Heart Attack Trial (ALLHAT)]
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The Antihypertensive and Lipid-Lowering Treatment to Prevent Heart Attack Trial (ALLHAT) was the largest antihypertensive treatment trial and the second largest lipid-lowering trial ever conducted. It also was a landmark cost-effectiveness study. The large size and diversity of participants, varied practice settings, and primary and secondary outcomes measured in ALLHAT makes the ALLHAT data set highly useful for epidemiologic investigations.

U.S., Puerto Rico, U.S. Virgin Islands, & CanadaThe Antihypertensive and Lipid-Lowering Treatment to Prevent Heart Attack Trial (ALLHAT) [University of Texas - School of Public Health - Coordinating Center for Clinical Trials]
UAMS Data Trust
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In December 2011, the Translational Research Institute (TRI) launched an enterprise data warehouse, called the UAMS Data Trust, to facilitate access to and integration of clinical, basic-science and other data for research and quality reporting. Currently, the UAMS Data Trust is updated monthly and contains electronic health care data from four clinical source systems: 1) Medipac (patient registration management system and hospital billing), 2) Centricity (outpatient electronic medical record system), 3) Sunrise (acute care electronic medical record system), and 4) SoftLab (clinical laboratory information system).

ArkansasUAMS Data TrustPhillips, Martha
ATN Patient Registry Database
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The Autism Treatment Network is a collaboration of medical centers dedicated to providing families with state of the art, multidisciplinary care. The ATN was established to provide a place for families to go for high quality, coordinated medical care for children and adolescents with autism and associated conditions.

The Autism Treatment Network supports a Patient Registry of families being seen at participating ATN centers. The ATN Patient Registry data is currently available only for members within the network, but we plan to make this resource more widely available in the future.

NationalATN Patient Registry DatabasePayakachat, Nalin
National Trauma Data Bank [American College of Surgeons]
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The National Trauma Data Bank® (NTDB) is the largest aggregation of trauma registry data ever assembled. The goal of the NTDB is to inform the medical community, the public, and decision makers about a wide variety of issues that characterize the current state of care for injured persons.

NTDB offers several Research Data Set (RDS) products:

• The NTDB RDS contains all records sent to NTDB for each admission year. Use this dataset to explore data on pediatric patients, or Level III, IV, V, or undesignated trauma centers. If you are looking at small patient cohort, such as a specific injury or procedure, you may want to use the NTDB RDS because the overall number of patients is much larger. This data set is not appropriate for making national estimates or yearly comparisons.

• The NSP RDS provides national estimates for adult patients seen in Level I and II trauma centers. These datasets contain weighted data for up 100 randomly selected trauma centers. The NSP should be used when it’s necessary to make inferences to the population of patients seen in US trauma centers, and when you will be making comparisons across admission years. The NSP should not be used to examine specific injuries or procedures.

NationalNational Trauma Data Bank [American College of Surgeons]
American Hospital Association (AHA) Annual Survey Database
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This comprehensive and dependable database on hospitals contains hospital-specific data items on 6,000+ hospitals and 450+ health care systems, including more than 700 data fields covering Organizational Structure, Personnel, Hospital Facilities and Services, and Financial Performance.

National
Multiple States
American Hospital Association
American Hospital Association (AHA) Data and Directories — Hospital and Health System Data Resources
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PLESASE SEPARTE EACH OUT SEPRATELY:AHA Healthcare DataViewerTM -- A web-based national source of proprietary hospital and health system data collected and verified by the American Hospital Association. AHA DataViewer content includes exclusive national survey data (e.g., AHA Annual Survey of Hospitals, AHA Annual Survey of Hospitals—IT Supplement), proprietary AHA membership data and much more.

AHA Healthcare IT Database: A Supplement to the AHA Annual Survey of Hospitals -- A database based on an annual survey of U.S. hospitals that tracks the adoption of electronic health records (also known as electronic medical records). The data from 3,200 hospitals include electronic clinical documentation, results viewing, decision support, bar coding and more.

The AHA Guide® is a comprehensive directory of U.S. hospitals, health systems, networks, alliances, and other organizations.

AHA Hospital Statistics™ is a comprehensive resource for analysis and comparison of health care industry trends in U.S. community hospitals. This extensive and reliable health care statistical resource includes five year trends in utilization, personnel, revenues and expenses across local, regional and national markets starting.

AHA Annual Survey Database contains a snapshot of hospital-specific data on approximately 6,500 hospitals and 400-plus systems, including as many as 1,000 data fields covering organizational structure, personnel, hospital facilities and services, and financial performance.

Complementary and Alternative Medicine (CAM) Survey is a comprehensive source of information on CAM programs and services in hospitals. Identifies what hospitals are offering and why; how CAM programs are financed; the reimbursement strategies used; staffing of clinics; business and strategic planning; program evaluation criteria and methods. Provides an analysis of what the data means and identifies consumer and hospital trends, and details on each institution that offers CAM along with contact information, and hospital demographics.

NationalAmerican Hospital Association (AHA) Data and Directories — Hospital and Health System Data Resources
Community Tracking Study -- Household Survey
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To track changes in health care access, utilization, coverage, costs, and other experiences with the health care system the Center for Studying Health System Change (HSC) periodically conducts a nationally representative household survey of the civilian, non-institutionalized population.

Household Survey topics include type of health insurance coverage, utilization of medical services (e.g., number of physician visits and number of emergency room visits), usual source of care, perceived quality of care, health status, employer health insurance offerings, problems paying medical bills, consumer-directed health care, health information-seeking, care coordination and assessments of care quality for chronic conditions.

NationalCenter for Studying Health System Change (HSC)
Community Tracking Study -- Employer Survey
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The Community Tracking Study (CTS) was a large-scale longitudinal investigation of health system change and its effects on people. Originally designed to track a cohort of American communities at two-year intervals beginning in 1996, this major research effort collected information to monitor and understand the evolution of health care in the United States. CTS investigated the ways in which hospitals, health plans, physicians, safety net providers, and other provider groups restructured their systems, and the forces driving the organizational change. Additionally, the project tracked health insurance coverage, access to care, use of health services, health care costs, and perceived quality of health care.

The Employer Survey collected information on employers' offers of health insurance coverage, employees' eligibility and enrollment in health plans, and for each plan offered, the plan type (HMO, POS, PPO, conventional), the premiums (employer and employee contributions), benefits, cost-sharing, and employer self-insurance status.

NationalRobert Wood Johnson Foundation
Community Tracking Study -- Physician Survey
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To provide an in-depth look at the issues and challenges physicians face in the rapidly changing health care system, HSC conducts nationally representative surveys of non-federal physicians who spend at least 20 hours a week in direct patient care.

The Community Tracking Study (CTS) Physician Survey data collection was focused primarily on physicians practicing in 60 randomly selected U.S. communities, allowing analyses to be conducted at both the national and community level. In 2008, the CTS Physician Survey was replaced by the HSC Health Tracking Physician Survey. The new survey name reflects the substitution of the clustered 60-site sample design with a more efficient national sample.

Both the CTS Physician Surveys and the HSC 2008 Health Tracking Physician Survey cover a wide variety of physician and practice dimensions, from basic physician demographic information, practice organization and career satisfaction to insurance acceptance, compensation arrangements, information technology use and charity care provision. The 2008 survey also includes questions on care management, quality reporting, care coordination, malpractice concerns, ownership of hospitals and medical equipment, and greater detail on use of information technology.

NationalCenter for Studying Health System Change (HSC)
Health and Medical Care Archive (HMCA) [Robert Wood Johnson Foundation (RWJF)]
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The Health and Medical Care Archive (HMCA) at the University of Michigan's Inter-University Consortium for Political and Social Research is the official data archive of the Robert Wood Johnson Foundation. HMCA is devoted to preserving and making available research data to expand knowledge about and contribute to the improvement of the health and health care of all Americans.

Each one of more than 100 collections includes complete documentation, often including original survey questionnaires; links to related publications; and access to restricted data. Data are provided in ASCII text format, and for many collections, in at least one additional format, i.e., SPSS, SAS or Stata.

NationalHealth and Medical Care Archive (HMCA) [Robert Wood Johnson Foundation (RWJF)]
HSC Health Tracking Physician Survey
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To provide an in-depth look at the issues and challenges physicians face in the rapidly changing health care system, HSC conducts nationally representative surveys of non-federal physicians who spend at least 20 hours a week in direct patient care. HSC has conducted five physician surveys to date.

Both the CTS Physician Surveys and the HSC 2008 Health Tracking Physician Survey cover a wide variety of physician and practice dimensions, from basic physician demographic information, practice organization and career satisfaction to insurance acceptance, compensation arrangements, information technology use and charity care provision. The 2008 survey also includes questions on care management, quality reporting, care coordination, malpractice concerns, ownership of hospitals and medical equipment, and greater detail on use of information technology.

Additional information about this survey can be found in various HSC Technical Publications (http://www.hschange.com/index.cgi?func=pubs&what=8).

NationalCenter for Studying Health System Change (HSC)
National Survey of America's Families (NSAF)
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The National Survey of America's Families (NSAF) purpose is to track the effects of recent federal policy changes decentralizing many social programs from the federal government to the states, focusing primarily on health care, income security, job training, and social services. The NSAF is a household survey that can be used to produce cross-sectional estimates for a wide variety of child, adult and family well-being indicators at the state level for 13 states and the nation as a whole. The survey provides quantitative measures of child, adult and family well-being in America, with an emphasis on persons in low-income families. National Survey of America's Families (NSAF) series of studies and publications (http://www.icpsr.umich.edu/icpsrweb/ICPSR/series/00216).

Multiple StatesUrban Institute
Robert Wood Johnson Foundation (RWJF) Data Hub
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The RWJF DataHub tracks state-level data and allows users to customize and visualize facts and figures on key health and health care topics. It's part of the Foundation’s commitment to providing timely, accessible information and evidence to inform policies and practices that help Americans lead healthier lives and get the care they need. It establishes a system of priority measures for monitoring state-level progress toward improving the nation’s health and health care.

NationalRobert Wood Johnson Foundation (RWJF) Data Hub
The Robert Wood Johnson Foundation Employer Health Insurance Survey
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The objectives of this study were to describe and understand employers' and employees' behavior with respect to employment-based health insurance, to track trends in health insurance provided by employers, and to evaluate selected policies to regulate or expand employment-based health insurance coverage. Data were collected on employers' offers of health insurance coverage, employees' eligibility and enrollment in health plans, and, for each plan offered, the plan type (HMO, POS, PPO, conventional), premiums (employer and employee contributions), benefits, cost-sharing, and employer self-insurance status. The study also collected information on the characteristics of employers and workers, including the number of employees at the establishment, the number of employees statewide and nationwide, and the distribution of workers by hours worked, age, sex, and earnings.

NationalInstitute for Social Research, University of Michigan
The Robert Wood Johnson Foundation Family Health Insurance Survey
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With the goal of remedying the previous lack of state-level data, the survey was conducted to aid in defining problems of insurance coverage and to analyze the impacts of ten states' policy options. The main unit of observation is the health insurance family, which includes the head, spouse, and their children up to age 18, or to age 23 if they were in school. Variables on health insurance coverage include the types of coverage respondents carried (Medicare, Medicaid, additional state or federal programs, and private policies), sources of private policy coverage, premiums paid for private policies, and number of months uninsured during the last year. Access to health care is measured by variables such as the type of usual health care provider, the amount of time it usually took to get to the doctor's office, and whether needed medical care was not received during the previous year. Variables on the utilization of health care include the number of overnight hospital stays, the number of visits to doctors, age at first DPT (diphtheria, whooping cough, and tetanus) shot, age at first oral polio immunization, and the number of months since the most recent breast exam and Pap smear. The survey also elicited self-reported health status and opinions on the health care system, gauged satisfaction/dissatisfaction with health services received, and gathered information on employment, income, education, migration, age, sex, marital status, race, Hispanic origin, and citizenship.

Multiple StatesInstitute for Social Research at University of Michigan
US Disability Statistics [Cornell University - Employment and Disability Institute]
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Our goal is to provide a set of well-documented disability statistics and rehabilitation data sources in a user-friendly and accessible manner to facilitate evidence-based advocacy, decision-making and research.

The disability statistics and rehabilitation data sources are the American Community Survey (ACS), the Current Population Survey (CPS), and Census 2000.

NationalUS Disability Statistics [Cornell University - Employment and Disability Institute]
Community Health Status Indicators (CHSI) to Combat Obesity, Heart Disease and Cancer [Centers for Disease Control and Prevention (CDC)]
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Community Health Status Indicators (CHSI) to combat obesity, heart disease, and cancer are major components of the Community Health Data Initiative. This dataset provides key health indicators for local communities and encourages dialogue about actions that can be taken to improve community health (e.g., obesity, heart disease, cancer). The CHSI report contains over 200 measures for each of the 3,141 United States counties. Although CHSI presents indicators like deaths due to heart disease and cancer, it is imperative to understand that behavioral factors such as obesity, tobacco use, diet, physical activity, alcohol and drug use, sexual behavior and others substantially contribute to these deaths.

NationalCommunity Health Status Indicators - CHSI 2009
Mini-Sentinel [US Food and Drug Administration (FDA)]
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Mini-Sentinel is a pilot project sponsored by the U.S. Food and Drug Administration (FDA) to create an active surveillance system - the Sentinel System - to monitor the safety of FDA-regulated medical products. Mini-Sentinel uses pre-existing electronic healthcare data from multiple sources.

Mini-Sentinel is part of the FDA’s Sentinel Initiative, which is exploring a variety of approaches for improving the Agency’s ability to quickly identify and assess safety issues.

NationalU.S. Food and Drug Administration (FDA)
Sentinel Initiative [US Food and Drug Administration (FDA)]
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The Sentinel Initiative aims to develop and implement a proactive system that will complement existing systems that the FDA has in place to track reports of adverse events linked to the use of its regulated products. The Sentinel System enables FDA to actively query diverse automated healthcare data holders—like electronic health record systems, administrative and insurance claims databases, and registries—to evaluate possible medical product safety issues quickly and securely.

NationalU.S. Food and Drug Administration (FDA)
Arkansas Birth Records [Arkansas Department of Health (ADH)]
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Arkansas Vital Records has birth records dating from February 1, 1914 through the present. There are a limited number of birth records available prior to 1914. Those records were filed with Arkansas Vital Records after 1914. We also have original copies of some Little Rock and Fort Smith births dating from 1881.

ArkansasStatewide Vital Records/Certificates [Arkansas Department of Health (ADH)]Phillips, Martha
Arkansas Central Cancer Registry (ACCR) [Arkansas Deptment of Health (ADH)]
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The Arkansas Central Cancer Registry (ACCR) is a population-based registry whose goal is to collect timely and complete data on all cancer cases diagnosed in the state.

Cancer Registry data are used to identify populations at increased risk of cancer, investigate public concerns of suspected excesses of cancer due to environmental or other factors, and monitor trends in cancer incidence and mortality so that appropriate and timely interventions are undertaken.

ArkansasHealth Statistics Branch (HSB) [Arkansas Department of Health (ADH)]Phillips, Martha
Arkansas Death Records [Arkansas Department of Health (ADH)]
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Arkansas Vital Records has death records dating from February 1, 1914 through the present. There are a limited number of death records available for deaths occurring between 1881 and 1914 in Little Rock and Fort Smith. The Arkansas History Commission keeps an alphabetical listing of deaths in Arkansas dating from 1914 through 1949, but they do not have the actual death records.

ArkansasStatewide Vital Records/Certificates [Arkansas Department of Health (ADH)]Phillips, Martha
Arkansas HIV/AIDS/STD Registry [Arkansas Department of Health (ADH)]
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The HIV/AIDS Surveillance Program, at the Arkansas Department of Health, is responsible for monitoring the HIV/AIDS epidemic in Arkansas in order to provide information to guide policy decisions, target resources, and help to evaluate services and prevention activities. This involves the collection, maintenance, and analysis of name-based HIV/AIDS information. All state HIV/AIDS surveillance systems are also responsible for maintaining the standards set by the Centers for Disease Control and Prevention (CDC), as outlined in the 2006 Technical Guidance for HIV/AIDS Surveillance Programs, Volume III.

ArkansasHealth Statistics Branch (HSB) [Arkansas Department of Health (ADH)]Phillips, Martha
Arkansas Immunization Information System - Arkansas WebIZ [Arkansas Department of Health (ADH)]
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Immunization Information Systems (IIS) are confidential, population-based, computerized databases that record all immunization doses administered by participating providers to persons residing within a given geopolitical area. These systems provide meaningful, near real-time data to support both clinical decision making, as well as the public health system. At the point of clinical care, an IIS can provide consolidated immunization histories for use by a vaccination provider in determining any needed client vaccinations. At the population level, an IIS provides aggregate data on vaccinations for use in surveillance and program operations, and in guiding public health action with the goals of improving vaccination rates and reducing vaccine-preventable diseases.

IIS are designed to provide assistance to immunization programs in identifying populations at high risk for vaccine-preventable diseases and target interventions and resources more effectively and efficiently. IIS combine immunization information from different sources into a single record and serve as official documentation that the individual can use to meet school, day care, and employment vaccination requirements.

ArkansasStatewide Immunization Data [Arkansas Department of Health (ADH)]Phillips, Martha
Arkansas Stroke Registry [Arkansas Department of Health (ADH) - American Heart Association (AHA)]
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The Arkansas Department of Health, in collaboration with the American Heart Association, manages a stroke registry by collecting real time data on stroke treatment from hospitals serving Arkansans.

ArkansasHealth Statistics Branch (HSB) [Arkansas Department of Health (ADH)]
Arkansas Trauma Registry (ATR) [Arkansas Department of Health (ADH)]
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The Arkansas Trauma Registry (ATR) is designed to develop and maintain a statewide trauma data collection and evaluation system (ref. ACT 559, The Trauma System ACT, Section 6a). The Arkansas Trauma Registry will provide the data to identify and drive process improvement activities that will reduce morbidity and mortality from traumatic events.

A trauma registry is a data collection system composed of uniform data elements that describe the injury event, demographics, pre-hospital information, diagnosis, care and outcomes of injured patients. The purpose of the trauma registry is to obtain, code, and sort this information for analysis, and reporting individual and aggregate results. Registry data is used for performance improvement, medical research, statistical analysis, critical pathways, care coordination, epidemiological and injury prevention.

ArkansasHealth Statistics Branch (HSB) [Arkansas Department of Health (ADH)]
Arkansas Behavioral Risk Factor Surveillance System (BRFSS) [Arkansas Department of Health (ADH)]
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The Behavioral Risk Factor Surveillance System (BRFSS) is a standardized, random telephone health survey conducted by each of the 50 states, Washington, D.C., and three U.S. territories under the guidance of the Centers for Disease Control and Prevention (CDC).

The BRFSS survey began in the 1980s after research showed that personal health behaviors play an important role in the existence of unnecessary deaths and illnesses. The survey allows individual states to collect data on personal behaviors (such as smoking, drinking, not getting exercise, being overweight, not getting preventive medical care, and not using seatbelts) that are linked to the leading causes of death (heart disease, cancer, stroke, diabetes, injury) and other important health issues. This information is used in a number of ways by different states.

The Arkansas Center for Health Statistics has been conducting a monthly BRFSS survey continuously since 1993 and currently completes over 4000 landline telephone and 1200 cellular phone interviews per month.

National
Arkansas
Health Statistics Branch (HSB) [Arkansas Department of Health (ADH)]Messias, Erick;
Phillips, Martha
Arkansas County Health Surveys [Arkansas Department of Health (ADH)]
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A County Health Survey is a questionnaire used to collect and evaluate personal risk behaviors that may affect the health of Arkansans. The County Health Survey may focus on adults - County Adult Health Survey - or on the youth - County Youth Health Survey. The County Health Surveys are conducted in cooperation with the Hometown Health Improvement (HHI) initiative.

● The County Adult Health Survey (CAHS) primarily focuses on behaviors that are linked to the leading causes of death (heart disease, cancer, stroke, diabetes and injury) and other important health issues. The CAHS is based on the Behavioral Risk Factor Surveillance System (BRFSS), developed by the Centers for Disease Control and Prevention (CDC).

● The County Youth Health Survey (CYHS) is designed to measure health risk behaviors such as smoking, drinking and driving, and obesity among the State's youth. The CYHS focuses on students in grades 7 through 12. The CYHS is based on the Youth Risk Behavior Survey, developed by the Centers for Disease Control and Prevention (CDC).

ArkansasHealth Statistics Branch (HSB) [Arkansas Department of Health (ADH)]
Arkansas Medicaid Beneficiary Satisfaction Surveys [Arkansas Foundation for Medical Care (AFMC)]
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The Arkansas Foundation for Medical Care conducts several surveys each year to measure how satisfied beneficiaries are with Medicaid programs and their prenatal and delivery care, and to assess how beneficiaries perceive their own health. Ratings questions, composites, health scales and question frequencies are used to measure satisfaction.

The ConnectCare, ARKids First A and B, and Non-Emergency Transportation surveys measure beneficiary satisfaction with these Medicaid programs. For ConnectCare and ARKids First A and B, AFMC conduct CAHPS (Consumer Assessment of Healthcare Providers and Systems) surveys, following HEDIS (Healthcare Effectiveness Data and Information Set) guidelines. CAHPS is scientifically designed to measure and report the experiences that form the basis of consumer satisfaction with health care.

ArkansasArkansas Medicaid Beneficiary Satisfaction Surveys [Arkansas Foundation for Medical Care (AFMC)]
Arkansas Pregnancy Risk Assessment Monitoring System (PRAMS) [Arkansas Department of Health (ADH)]
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The Pregnancy Risk Assessment Monitoring System (PRAMS) is a joint project of the Arkansas Department of Health – Center for Health Statistics and the U.S. Centers for Disease Control and Prevention (CDC). Developed by CDC, PRAMS is an ongoing, state-and population-based survey designed to collect information on self-reported maternal behaviors and experiences that occur before, during, and shortly after pregnancy among women who deliver a live-born infant. A questionnaire is mailed to a sample of mothers that is randomly selected from state birth certificate records. Responses are accumulated during the calendar year, combined with birth certificate data, and then weighted to be representative of all mothers who had a live-born infant in the state. Participation in the survey is entirely voluntary.

ArkansasHealth Statistics Branch (HSB) [Arkansas Department of Health (ADH)]Phillips, Martha
Arkansas Tobacco Adult & Youth Surveys [Arkansas Department of Health (ADH)]
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Preventing initiation of smoking in youth and young adults as well as promoting cessation among all smokers is important. The Adult Tobacco Survey (ATS) is one tool used to monitor smoking prevalence and cessation.

The Youth Tobacco Survey (YTS) is one used to monitor and measure outcomes related to the use of cigarettes and other tobacco products among young people in grades 6 through 12 in Arkansas.

ArkansasHealth Statistics Branch (HSB) [Arkansas Department of Health (ADH)]
Education Research — Arkansas Research Center (ARC)
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The Arkansas Research Center (ARC) is a hub for longitudinal data dissemination, research and professional development. ARC provides researchers with data, in accordance with FERPA and HIPPA regulations, to evaluate and assess outcomes of educational programs. ARC has worked with researchers from UAMS, Hendrix College, the University of Central Arkansas, the University of Arkansas at Little Rock, the AR Advanced Initiative for Math and Science, and other agencies and universities, to work towards the goal of high quality education in Arkansas.

ArkansasEducation Research — Arkansas Research Center (ARC)Swearingen, Christopher
UAMS genomics database - Dtree
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UAMS genomics database - dBBQs
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The Cancer Imaging Archive
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Radiology and Pathology images or cancer plus corresponding clinical data and image derived features from both humans and

ARCDR
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NDAR
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CDC-BRFS
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CDC-PRAMS
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AR-DPH DBs
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